Ford Joseph, Reuber Markus
University of Sheffield, UK.
Epilepsy Behav Rep. 2024 Aug 8;28:100705. doi: 10.1016/j.ebr.2024.100705. eCollection 2024.
The COVID-19 pandemic brought telemedicine into mainstream medical practice. Although it is widely agreed that telemedicine could be beneficial for patients with seizures, there has been little prior research investigating patients' views on this subject. In this qualitative study, we conducted semi-structured interviews with 10 patients and one companion about their experiences of telemedicine. We also received written thoughts from one additional patient. Participants' views fell under three broad themes. The first, "Convenience and practicality", saw participants praising the flexibility of telephone consultations while noting that such consultations could introduce new practical problems. The second, "(Lack of) shared presence", covered participants' generally negative feelings about not being in the same room as their neurologists. The third, "Situation dependency", saw participants drawing fine distinctions about the circumstances in which face-to-face and telephone consultations were suitable. Overall, although patients with seizures are generally positive about the convenience of telephone consultations, they have concerns about how they may lead to misunderstandings or affect the doctor-patient relationship. These concerns could be assuaged to some extent by offering video consultations or scheduling alternating telephone and face-to-face consultations
新冠疫情使远程医疗成为主流医疗实践方式。尽管人们普遍认为远程医疗对癫痫患者有益,但此前很少有研究调查患者对这一主题的看法。在这项定性研究中,我们对10名患者及其一名陪同人员进行了关于他们远程医疗体验的半结构化访谈。我们还收到了另一名患者的书面想法。参与者的观点主要分为三大主题。第一个主题是“便利性与实用性”,参与者称赞电话咨询的灵活性,但也指出此类咨询可能会带来新的实际问题。第二个主题是“(缺乏)同处在场感”,涵盖了参与者对未与神经科医生同处一室的普遍负面感受。第三个主题是“情况依赖性”,参与者对面对面咨询和电话咨询适用的情况进行了细致区分。总体而言,尽管癫痫患者普遍认可电话咨询的便利性,但他们担心这可能会导致误解或影响医患关系。通过提供视频咨询或安排交替进行电话咨询和面对面咨询,这些担忧在一定程度上可以得到缓解。