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重度及长期神经性厌食症的危害降低:旅程的一部分而非终点——基于亲身经历的叙述性综述

Harm reduction in severe and long-standing Anorexia Nervosa: part of the journey but not the destination-a narrative review with lived experience.

作者信息

Birch Edwin, Downs James, Ayton Agnes

机构信息

Oxford Health NHS Foundation Trust, Oxford, OX4 4XN, UK.

Expert by Experience and Independent Researcher, Oxford, UK.

出版信息

J Eat Disord. 2024 Sep 12;12(1):140. doi: 10.1186/s40337-024-01063-3.

DOI:10.1186/s40337-024-01063-3
PMID:39267190
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11396453/
Abstract

Questions remain about the best approaches to treatment for the subset of patients with severe and long-standing Anorexia Nervosa, commonly described in the literature as "Severe and Enduring Anorexia Nervosa." When discussing the optimal strategies and goals for treating this group, there is uncertainty over whether to focus on refining current treatment methods or exploring alternative approaches. One such alternative is "harm reduction," which has generated a wave of positive interest from patients and clinicians alike because of its emphasis on individual autonomy, personal goals and quality of life. While harm reduction can provide an attractive alternative to seemingly endless cycles of ineffective treatment, this narrative review builds on previous work to highlight the inadequate terminology and possible dangers of considering harm reduction as the endpoint of treatment. In conjunction with perspectives from a lived experience author, we consider wider contextual and ethical issues in the field of eating disorders, which should inform the role of harm-reduction approaches in this patient group.

摘要

对于患有严重且长期神经性厌食症的患者亚组(在文献中通常被描述为“严重且持久的神经性厌食症”),最佳治疗方法仍存在疑问。在讨论治疗该群体的最佳策略和目标时,对于是专注于改进现有治疗方法还是探索替代方法存在不确定性。一种这样的替代方法是“减少伤害”,由于其强调个人自主性、个人目标和生活质量,它在患者和临床医生中都引起了一波积极关注。虽然减少伤害可以为看似无休止的无效治疗循环提供一个有吸引力的替代方案,但这篇叙述性综述基于先前的工作,强调了将减少伤害视为治疗终点时术语的不足和可能的危险。结合一位有实际经历的作者的观点,我们考虑了饮食失调领域更广泛的背景和伦理问题,这些问题应该为减少伤害方法在该患者群体中的作用提供参考。

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本文引用的文献

1
"Terminal anorexia nervosa" may not be terminal: An empirical evaluation.“终末期神经性厌食症”可能并非终末期:一项实证评估。
J Psychopathol Clin Sci. 2024 Apr;133(3):285-296. doi: 10.1037/abn0000912.
2
Outcomes in people with eating disorders: a transdiagnostic and disorder-specific systematic review, meta-analysis and multivariable meta-regression analysis.饮食失调患者的结局:一项跨诊断和特定疾病的系统评价、荟萃分析及多变量荟萃回归分析。
World Psychiatry. 2024 Feb;23(1):124-138. doi: 10.1002/wps.21182.
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What Is Futility in Psychiatry?精神病学中的“无效治疗”是什么?
AJOB Neurosci. 2024 Jan-Mar;15(1):67-69. doi: 10.1080/21507740.2023.2292508. Epub 2024 Jan 11.
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"Ordinary days would be extraordinary": The lived experiences of severe and enduring anorexia nervosa.“平凡日子亦非凡”:重度及持续性神经性厌食症患者的生活经历
Int J Eat Disord. 2023 Dec;56(12):2273-2282. doi: 10.1002/eat.24058. Epub 2023 Sep 21.
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Specific psychological therapies versus other therapies or no treatment for severe and enduring anorexia nervosa.特定心理疗法对比其他疗法或不治疗用于严重且持久的神经性厌食症。
Cochrane Database Syst Rev. 2023 Aug 23;8(8):CD011570. doi: 10.1002/14651858.CD011570.pub2.
6
Care pathways for longstanding eating disorders must offer paths to recovery, not managed decline.针对长期饮食失调的护理路径必须提供康复途径,而非可控的病情恶化途径。
BJPsych Bull. 2024 Jun;48(3):177-181. doi: 10.1192/bjb.2023.38.
7
Terminal anorexia nervosa cannot currently be identified.目前无法确定终端厌食症。
Int J Eat Disord. 2023 Jul;56(7):1329-1334. doi: 10.1002/eat.23957. Epub 2023 Apr 13.
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Clinical and Ethical Dilemmas in the Involuntary Treatment of Anorexia Nervosa.神经性厌食症非自愿治疗中的临床与伦理困境
Harv Rev Psychiatry. 2023;31(1):14-21. doi: 10.1097/HRP.0000000000000355.
9
A lived experience response to the proposed diagnosis of terminal anorexia nervosa: learning from iatrogenic harm, ambivalence and enduring hope.对拟诊的终末期神经性厌食症的一种亲身经历回应:从医源性伤害、矛盾心理和持久希望中学习
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Creating a care pathway for patients with longstanding, complex eating disorders.为患有长期复杂饮食失调症的患者创建护理路径。
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