Schut Laura, Godschalk Marc, de Jong Martie
Parnassia Groep, YOUZ. Leggelostraat 85, 2541HR, The Hague, The Netherlands.
Emergis, Department of Eating disorders, Oostmolenweg 101, Kloetinge, 4481 PM, The Netherlands.
J Eat Disord. 2024 Dec 24;12(1):213. doi: 10.1186/s40337-024-01172-z.
Improving care for SEED-AN patients is urgently needed. Current specialist eating disorder (SEDU) programs have minimal impact, resulting in poor quality of life. Flexible assertive community treatment (FACT) focuses on improving the quality of life of people with severe mental illness.
This study systematically examined professionals' and patients' experiences with existing care for SEED AN in two settings in two health districts in the Netherlands. Specifically, the specialised Eating Disorder Unit and FACT.
A qualitative approach was used: Twelve professionals participated in focus groups, and four professionals and six patients were interviewed individually. Reflective thematic analysis was used to analyse the data.
Four themes were constructed: "We feel ignorant in the treatment of SEED-AN patients"; "There is a disability to act"; "We are more than executive practitioners alone"; and "The professionals at FACT have given me back my confidence in treatment". The findings reflect how support for SEED-AN patients is provided by both FACT and SEDU professionals and how SEED-AN patients experience the FACT approach.
A resource group model promotes collaboration among professionals, patients and the patient's support system. The model is expected to increase knowledge about SEED-AN among stakeholders who support the quality of life of SEED-AN patients.
迫切需要改善对患有种子-神经性厌食症(SEED-AN)患者的护理。当前的专业饮食失调(SEDU)项目影响甚微,导致生活质量低下。灵活的积极社区治疗(FACT)专注于提高严重精神疾病患者的生活质量。
本研究系统地考察了荷兰两个健康区的两种环境中专业人员和患者对现有SEED-AN护理的体验。具体而言,即专业饮食失调科和FACT。
采用定性研究方法:12名专业人员参加了焦点小组,4名专业人员和6名患者接受了单独访谈。使用反思性主题分析来分析数据。
构建了四个主题:“在治疗SEED-AN患者方面我们感到无知”;“存在行动障碍”;“我们不仅仅是单纯的执行从业者”;以及“FACT的专业人员让我重新对治疗有了信心”。研究结果反映了FACT和SEDU专业人员如何为SEED-AN患者提供支持,以及SEED-AN患者如何体验FACT方法。
资源小组模式促进了专业人员、患者和患者支持系统之间的合作。该模式有望增加支持SEED-AN患者生活质量的利益相关者对SEED-AN的了解。