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本文引用的文献

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Guidance for Pediatric End-of-Life Care.儿童临终关怀指南。
Pediatrics. 2022 May 1;149(5). doi: 10.1542/peds.2022-057011.
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The Unspeakable Nature of Death & Dying During Childhood: A Silenced Phenomenon in Pediatric Care.童年时期死亡与濒死的难以言喻的本质:儿科护理中一个被忽视的现象。
Omega (Westport). 2024 May;89(1):88-107. doi: 10.1177/00302228211067034. Epub 2022 Jan 14.
3
Serious Illness Conversations in Pediatrics: A Case Review.儿科重症疾病沟通:病例回顾
Children (Basel). 2020 Aug 18;7(8):102. doi: 10.3390/children7080102.
4
Pediatric Resident Perception and Participation in End-of-Life Care.儿科住院医师对临终关怀的认知与参与
Am J Hosp Palliat Care. 2020 Nov;37(11):936-942. doi: 10.1177/1049909120913041. Epub 2020 Mar 20.
5
Toward an Understanding of Advance Care Planning in Children With Medical Complexity.儿童医疗复杂性患者的预先医疗照护计划理解研究
Pediatrics. 2020 Mar;145(3). doi: 10.1542/peds.2019-2241. Epub 2020 Feb 13.
6
Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital.儿科住院医师在儿童医院照顾临终儿童的体验。
Acad Pediatr. 2020 Jan-Feb;20(1):81-88. doi: 10.1016/j.acap.2019.07.008. Epub 2019 Jul 31.
7
General paediatric inpatient deaths over a 15-year period.15年间的普通儿科住院患者死亡情况。
Paediatr Child Health. 2017 May;22(2):80-83. doi: 10.1093/pch/pxx005. Epub 2017 Apr 17.
8
Guidance on Forgoing Life-Sustaining Medical Treatment.放弃生命支持治疗的指南。
Pediatrics. 2017 Sep;140(3). doi: 10.1542/peds.2017-1905.
9
Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU.新生儿、儿科和成人 ICU 中的以家庭为中心的护理指南。
Crit Care Med. 2017 Jan;45(1):103-128. doi: 10.1097/CCM.0000000000002169.
10
Early introduction of palliative care and advanced care planning for children with complex chronic medical conditions: a pilot study.为患有复杂慢性疾病的儿童早期引入姑息治疗和高级护理计划:一项试点研究。
Child Care Health Dev. 2016 May;42(3):439-49. doi: 10.1111/cch.12332. Epub 2016 Mar 29.

儿科学与对死亡和濒死的不适感

Paediatrics and discomfort with death and dying.

作者信息

Johnson K Taneille, Dahl Nicole

机构信息

Department of Critical Care Medicine, The Hospital for Sick Children, Toronto, Ontario.

出版信息

Paediatr Child Health. 2023 Jun 6;29(5):303-305. doi: 10.1093/pch/pxad029. eCollection 2024 Aug.

DOI:10.1093/pch/pxad029
PMID:39281358
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11398928/
Abstract

Death and dying, while uncommon in day-to-day paediatrics practice, are becoming increasingly common occurrences as children with life-limiting illnesses are living longer. We reflect on our experiences with death and dying in our residency training and whether paediatrics, as a specialty, is uncomfortable with death. Paediatric trainees should be included in honest discussions about disease trajectories and participate in providing end-of-life care. Anticipatory guidance helps personalize care and can prevent unnecessary procedures or suffering that patients may experience. While trainees may not be present at the end-of-life for many patients, managing death and dying are important competencies for future paediatricians. Current paediatricians should reflect on their comfort with death and how this may impact their patient care.

摘要

死亡和濒死情况在日常儿科实践中虽不常见,但随着患有危及生命疾病的儿童存活时间延长,此类情况正变得越来越普遍。我们回顾了住院医师培训期间处理死亡和濒死情况的经历,以及儿科作为一个专业领域是否对死亡感到不适。儿科实习生应参与关于疾病发展轨迹的坦诚讨论,并参与临终关怀。预先指导有助于使护理个性化,并可防止患者可能经历的不必要的程序或痛苦。虽然实习生可能不会在许多患者的临终阶段在场,但处理死亡和濒死情况是未来儿科医生的重要能力。现任儿科医生应反思自己对死亡的接受程度以及这可能如何影响他们对患者的护理。