Moumen Mohammed, Zaino Mallory L, Salisbury Katherine R, Pichardo Rita O, Feldman Steven R
Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, NC, USA.
Department of Pathology, Wake Forest School of Medicine, Winston-Salem, NC, USA.
J Psoriasis Psoriatic Arthritis. 2023 Jul;8(3):96-99. doi: 10.1177/24755303231179373. Epub 2023 May 25.
Psoriasis is a chronic inflammatory disease that may affect the genitalia in up to 60% of patients. This is a significant concern to patients; however, they may be too embarrassed to report genital involvement or seek help for it spontaneously. Information on preferred language that would put patients more at ease discussing disease in sensitive areas is lacking.
To address language as a barrier to care in patients with psoriasis by identifying preferred terminology when discussing genital involvement of the disease with physicians.
A qualitative study was performed that consisted of one-on-one interviews with patients with psoriasis; thematic analysis was used to analyze the data.
Themes included (1) personal experience with genital psoriasis; (2) timespan between genital psoriasis symptom onset and diagnosis; (3) patient-provider communication; (4) patient-provider preference, and (5) patient terminology preference.
Our study highlights providers' failure to ask psoriasis patients about genital involvement of the disease and variation in patient response on preferred language when discussing sensitive topics. Dermatologists may need to be cognizant of the patient's comfort level using verbal and nonverbal communication and tailor their approach to the individual.
银屑病是一种慢性炎症性疾病,高达60%的患者生殖器可能会受到影响。这是患者非常关心的问题;然而,他们可能会因尴尬而不愿报告生殖器受累情况或主动寻求帮助。目前缺乏关于何种语言能让患者在讨论敏感部位疾病时更放松的信息。
通过确定患者与医生讨论疾病生殖器受累情况时的首选术语,解决语言成为银屑病患者获得治疗的障碍这一问题。
进行了一项定性研究,包括对银屑病患者进行一对一访谈;采用主题分析法分析数据。
主题包括(1)生殖器银屑病的个人经历;(2)生殖器银屑病症状出现至诊断的时间跨度;(3)患者与医疗服务提供者的沟通;(4)患者与医疗服务提供者的偏好,以及(5)患者的术语偏好。
我们的研究凸显了医疗服务提供者未询问银屑病患者疾病生殖器受累情况,以及在讨论敏感话题时患者对首选语言的反应存在差异。皮肤科医生可能需要通过言语和非言语沟通了解患者的舒适度,并根据个体情况调整治疗方法。