Suppr超能文献

对患者与医生讨论生殖器银屑病时偏好语言的定性研究。

A Qualitative Examination of the Preferred Language for Patients Discussing Genital Psoriasis With the Physician.

作者信息

Moumen Mohammed, Zaino Mallory L, Salisbury Katherine R, Pichardo Rita O, Feldman Steven R

机构信息

Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, NC, USA.

Department of Pathology, Wake Forest School of Medicine, Winston-Salem, NC, USA.

出版信息

J Psoriasis Psoriatic Arthritis. 2023 Jul;8(3):96-99. doi: 10.1177/24755303231179373. Epub 2023 May 25.

Abstract

BACKGROUND

Psoriasis is a chronic inflammatory disease that may affect the genitalia in up to 60% of patients. This is a significant concern to patients; however, they may be too embarrassed to report genital involvement or seek help for it spontaneously. Information on preferred language that would put patients more at ease discussing disease in sensitive areas is lacking.

OBJECTIVE

To address language as a barrier to care in patients with psoriasis by identifying preferred terminology when discussing genital involvement of the disease with physicians.

METHODS

A qualitative study was performed that consisted of one-on-one interviews with patients with psoriasis; thematic analysis was used to analyze the data.

RESULTS

Themes included (1) personal experience with genital psoriasis; (2) timespan between genital psoriasis symptom onset and diagnosis; (3) patient-provider communication; (4) patient-provider preference, and (5) patient terminology preference.

CONCLUSION

Our study highlights providers' failure to ask psoriasis patients about genital involvement of the disease and variation in patient response on preferred language when discussing sensitive topics. Dermatologists may need to be cognizant of the patient's comfort level using verbal and nonverbal communication and tailor their approach to the individual.

摘要

背景

银屑病是一种慢性炎症性疾病,高达60%的患者生殖器可能会受到影响。这是患者非常关心的问题;然而,他们可能会因尴尬而不愿报告生殖器受累情况或主动寻求帮助。目前缺乏关于何种语言能让患者在讨论敏感部位疾病时更放松的信息。

目的

通过确定患者与医生讨论疾病生殖器受累情况时的首选术语,解决语言成为银屑病患者获得治疗的障碍这一问题。

方法

进行了一项定性研究,包括对银屑病患者进行一对一访谈;采用主题分析法分析数据。

结果

主题包括(1)生殖器银屑病的个人经历;(2)生殖器银屑病症状出现至诊断的时间跨度;(3)患者与医疗服务提供者的沟通;(4)患者与医疗服务提供者的偏好,以及(5)患者的术语偏好。

结论

我们的研究凸显了医疗服务提供者未询问银屑病患者疾病生殖器受累情况,以及在讨论敏感话题时患者对首选语言的反应存在差异。皮肤科医生可能需要通过言语和非言语沟通了解患者的舒适度,并根据个体情况调整治疗方法。

相似文献

10
Patients' experience of psoriasis in the genital area.患者生殖器部位银屑病的体验。
Dermatology. 2012;224(3):271-6. doi: 10.1159/000338858. Epub 2012 Jun 4.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验