女性对常规护理中基因筛查的偏好：一项定性研究。
Women's preferences for genetic screening in routine care: A qualitative study.
机构信息
Huntsman Cancer Institute, University of Utah Health, Salt Lake City, UT, USA; Department of Population Health Sciences, University of Utah, Salt Lake City, UT, USA.
Huntsman Cancer Institute, University of Utah Health, Salt Lake City, UT, USA.
出版信息
Patient Educ Couns. 2025 Jan;130:108439. doi: 10.1016/j.pec.2024.108439. Epub 2024 Sep 15.
OBJECTIVE
Examine decision-making regarding when women would prefer to receive reproductive carrier and cancer predisposition screening and from what clinician.
METHODS
20 women completed in-depth interviews via Zoom exploring their views on the provision of reproductive carrier and cancer predisposition screening. Our analysis identified themes related to what informs women's preferences for when they would like to receive a genetic screening offer and by which clinician.
RESULTS
Participants' responses to questions about when they would be interested in receiving genetic screening were best understood through the lens of the Extended Parallel Process Model. Specifically, personal utility of the information, a woman's family health history and cost were key factors in decision-making. Women considered their clinician's knowledge and their trust in and relationship with the clinician when deciding from whom they would prefer to receive an offer of genetic screening.
CONCLUSION
OB/GYN clinic patients may accept an offer of genetic screening from a knowledgeable and trusted clinician for carrier and cancer predisposition screening preconceptionally or prenatally.
PRACTICE IMPLICATIONS
Integrating genetic reproductive and cancer predisposition screening into the care provided to reproductive age OB/GYN patients may be acceptable to this population.
目的
探讨女性希望何时接受生殖载体和癌症易感性筛查以及希望由哪位临床医生提供这些筛查的决策依据。
方法
20 名女性通过 Zoom 完成了深入访谈，探讨了她们对提供生殖载体和癌症易感性筛查的看法。我们的分析确定了与哪些因素影响女性对接受遗传筛查的偏好以及由哪位临床医生提供这些筛查的偏好相关的主题。
结果
通过扩展并行处理模型的视角，可以更好地理解参与者对何时有兴趣接受基因筛查的问题的回答。具体而言，信息的个人效用、女性的家族健康史和成本是决策的关键因素。女性在决定从谁那里接受遗传筛查的建议时，会考虑到临床医生的知识、她们对临床医生的信任以及与临床医生的关系。
结论
妇产科诊所的患者可能会接受知识渊博且值得信赖的临床医生提供的生殖载体和癌症易感性筛查建议，无论是在孕前还是产前。
实践意义
将遗传生殖和癌症易感性筛查纳入到妇产科患者的常规护理中可能会被这一人群所接受。
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