School of Health, Business and Natural Sciences, University of Akureyri, Solborg v/Nordurslod 2, 600 Akureyri, Iceland.
School of Nursing, University of Minnesota, 308 Harvard Street SE, Minneapolis, MN 55455, USA.
Int J Environ Res Public Health. 2024 Sep 16;21(9):1213. doi: 10.3390/ijerph21091213.
Dementia care research has largely ignored the challenges that may emerge from couple and family dynamics, especially about second partnerships in blended families. This paper details the case of a 79-year-old man, Hannes, in his second partnership who tried to handle the complexities of his wife's dementia care as her children and healthcare providers discounted his role as husband and decision maker. He faced difficult communications with family members and challenges to his role as decision maker by healthcare providers and legal system professionals. This man's story is explored through multiple interviews and document analyses from 2020 to 2023. This case study uses the concept of the "wicked problem" to frame the potential complexities of dementia care when blended families are involved in decision making. This framework allows us to consider the many facets of family dementia care and how improvements could be made to facilitate role transitions and family decision making.
痴呆症护理研究在很大程度上忽视了可能从夫妻和家庭动态中出现的挑战，特别是在混合家庭中的第二伴侣关系方面。本文详细介绍了一位 79 岁的男子 Hannes 的案例，他处于第二段伴侣关系中，试图应对妻子痴呆症护理的复杂性，而他的妻子的子女和医疗保健提供者却忽视了他作为丈夫和决策者的角色。他面临着与家庭成员沟通困难的问题，以及医疗保健提供者和法律系统专业人员对他作为决策者的角色的挑战。通过 2020 年至 2023 年的多次访谈和文件分析，探讨了这个男人的故事。本案例研究使用“棘手问题”的概念来构建当混合家庭参与决策时，痴呆症护理可能出现的潜在复杂性。这个框架让我们可以考虑家庭痴呆症护理的许多方面，以及如何进行改进以促进角色过渡和家庭决策。
