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Supermarket Transaction Records In Dietary Evaluation: the STRIDE study: validation against self-reported dietary intake.超市交易记录在膳食评估中的应用:STRIDE 研究:与自我报告的膳食摄入的验证。
Public Health Nutr. 2023 Dec;26(12):2663-2676. doi: 10.1017/S1368980023001842. Epub 2023 Sep 6.
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Association Between Purchase of Over-the-Counter Medications and Ovarian Cancer Diagnosis in the Cancer Loyalty Card Study (CLOCS): Observational Case-Control Study.《癌症忠诚卡研究(CLOCS)中:观察性病例对照研究》购买非处方药物与卵巢癌诊断之间的关联。
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4
Connected Bradford:  a Whole System Data Linkage Accelerator.连接布拉德福德:一个全系统数据链接加速器。
Wellcome Open Res. 2022 Nov 7;7:26. doi: 10.12688/wellcomeopenres.17526.2. eCollection 2022.
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Psychology of personal data donation.个人数据捐赠的心理学。
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The UK's National Programme for IT: Why was it dismantled?英国国家信息技术计划:为何被拆解?
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Int J Epidemiol. 2013 Feb;42(1):111-27. doi: 10.1093/ije/dys064. Epub 2012 Apr 16.
8
Born in Bradford, a cohort study of babies born in Bradford, and their parents: protocol for the recruitment phase.《布拉德福德出生队列研究:关于在布拉德福德出生的婴儿及其父母的研究方案:招募阶段》
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利用数字足迹数据进行人群健康研究:英国合作、挑战与机遇的讨论。

Harnessing digital footprint data for population health: a discussion on collaboration, challenges and opportunities in the UK.

机构信息

MRC Integrative Epidemiology Unit, Bristol, UK

Digital Footprints Lab, Univeristy of Bristol, Bristol, UK.

出版信息

BMJ Health Care Inform. 2024 Sep 28;31(1):e101119. doi: 10.1136/bmjhci-2024-101119.

DOI:10.1136/bmjhci-2024-101119
PMID:39343444
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11448216/
Abstract

Digital footprint data are inspiring a new era in population health and well-being research. Linking these novel data with other datasets is critical for future research wishing to use these data for the public good. In order to succeed, successful collaboration among industry, academics and policy-makers is vital. Therefore, we discuss the benefits and obstacles for these stakeholder groups in using digital footprint data for research in the UK. We advocate for policy-makers' inclusion in research efforts, stress the exceptional potential of digital footprint research to impact policy-making and explore the role of industry as data providers, with a focus on shared value, commercial sensitivity, resource requirements and streamlined processes. We underscore the importance of multidisciplinary approaches, consumer trust and ethical considerations in navigating methodological challenges and further call for increased public engagement to enhance societal acceptability. Finally, we discuss how to overcome methodological challenges, such as reproducibility and sharing of learnings, in future collaborations. By adopting a multiperspective approach to outlining the challenges of working with digital footprint data, our contribution helps to ensure that future research can navigate these challenges effectively while remaining reproducible, ethical and impactful.

摘要

数字足迹数据正在激发人口健康和福祉研究的新时代。将这些新数据与其他数据集相链接,对于未来希望将这些数据用于公益的研究至关重要。为了取得成功,行业、学术界和政策制定者之间的成功合作至关重要。因此,我们讨论了这些利益相关者群体在英国使用数字足迹数据进行研究的好处和障碍。我们主张政策制定者参与研究工作,强调数字足迹研究对影响政策制定的特殊潜力,并探讨了行业作为数据提供者的作用,重点是共享价值、商业敏感性、资源需求和简化流程。我们强调了在应对方法学挑战时采用多学科方法、消费者信任和道德考虑的重要性,并进一步呼吁增加公众参与度以提高社会可接受性。最后,我们讨论了如何在未来的合作中克服方法学挑战,例如可重复性和学习成果的共享。通过采用多角度的方法来概述使用数字足迹数据的挑战,我们的贡献有助于确保未来的研究能够在保持可重复性、道德性和影响力的同时有效地应对这些挑战。