MRC Integrative Epidemiology Unit, Bristol, UK
Digital Footprints Lab, Univeristy of Bristol, Bristol, UK.
BMJ Health Care Inform. 2024 Sep 28;31(1):e101119. doi: 10.1136/bmjhci-2024-101119.
Digital footprint data are inspiring a new era in population health and well-being research. Linking these novel data with other datasets is critical for future research wishing to use these data for the public good. In order to succeed, successful collaboration among industry, academics and policy-makers is vital. Therefore, we discuss the benefits and obstacles for these stakeholder groups in using digital footprint data for research in the UK. We advocate for policy-makers' inclusion in research efforts, stress the exceptional potential of digital footprint research to impact policy-making and explore the role of industry as data providers, with a focus on shared value, commercial sensitivity, resource requirements and streamlined processes. We underscore the importance of multidisciplinary approaches, consumer trust and ethical considerations in navigating methodological challenges and further call for increased public engagement to enhance societal acceptability. Finally, we discuss how to overcome methodological challenges, such as reproducibility and sharing of learnings, in future collaborations. By adopting a multiperspective approach to outlining the challenges of working with digital footprint data, our contribution helps to ensure that future research can navigate these challenges effectively while remaining reproducible, ethical and impactful.
数字足迹数据正在激发人口健康和福祉研究的新时代。将这些新数据与其他数据集相链接,对于未来希望将这些数据用于公益的研究至关重要。为了取得成功,行业、学术界和政策制定者之间的成功合作至关重要。因此,我们讨论了这些利益相关者群体在英国使用数字足迹数据进行研究的好处和障碍。我们主张政策制定者参与研究工作,强调数字足迹研究对影响政策制定的特殊潜力,并探讨了行业作为数据提供者的作用,重点是共享价值、商业敏感性、资源需求和简化流程。我们强调了在应对方法学挑战时采用多学科方法、消费者信任和道德考虑的重要性,并进一步呼吁增加公众参与度以提高社会可接受性。最后,我们讨论了如何在未来的合作中克服方法学挑战,例如可重复性和学习成果的共享。通过采用多角度的方法来概述使用数字足迹数据的挑战,我们的贡献有助于确保未来的研究能够在保持可重复性、道德性和影响力的同时有效地应对这些挑战。