Riegel Barbara, De Maria Maddalena, Barbaranelli Claudio, Luciani Michela, Ausili Davide, Dickson Victoria Vaughan, Jaarsma Tiny, Matarese Maria, Stromberg Anna, Vellone Ercole
J Cardiovasc Nurs. 2025;40(2):103-113. doi: 10.1097/JCN.0000000000001146. Epub 2024 Sep 30.
In recent years, there has been an exponential increase in attention paid to the patient-reported outcome of self-care. Many investigators have used one of the families of self-care instruments freely available on the website www.self-care-measures.com . These self-care measures have been translated into many languages, which are also available on the website. The measures include both disease-specific and generic instruments, which are based on a common theoretical framework, the Middle Range Theory of Self-Care of Chronic Illness.
The purpose of this article is to illustrate similarities among the instruments and to standardize their scoring, analysis, and use. We describe the Self-Care of Heart Failure Index, the Self-Care of Coronary Heart Disease Inventory, the Self-Care of Hypertension Inventory, the Self-Care of Diabetes Inventory, the Self-Care of Chronic Obstructive Pulmonary Disease Inventory, the Self-Care of Chronic Illness Inventory, and the Self-Care Inventory. Detailed guidance on scoring, translation, and analysis is provided. Complementary measures of self-care self-efficacy and those used to measure caregiver contributions to patient self-care are briefly described.
Many of the common questions of instrument users are answered in this article. Following this guidance will facilitate consistent use of the instruments, which will enable users to compare their results to those of others worldwide and facilitate future reviews and meta-analyses.Clinical ImplicationsThis review, emphasizing standard scoring and interpretation, is useful for clinicians and researchers across various populations and settings.
近年来，对患者自我护理报告结局的关注呈指数级增长。许多研究人员使用了可在网站www.self-care-measures.com上免费获取的自我护理工具系列之一。这些自我护理措施已被翻译成多种语言，也可在该网站上获取。这些措施包括特定疾病和通用工具，它们基于一个共同的理论框架——慢性病自我护理中程理论。
本文旨在阐述这些工具之间的相似之处，并规范其评分、分析和使用。我们描述了心力衰竭自我护理指数、冠心病自我护理量表、高血压自我护理量表、糖尿病自我护理量表、慢性阻塞性肺疾病自我护理量表、慢性病自我护理量表和自我护理量表。提供了关于评分、翻译和分析的详细指导。简要描述了自我护理自我效能的补充测量方法以及用于测量照顾者对患者自我护理贡献的方法。
本文回答了工具使用者的许多常见问题。遵循本指导将有助于工具的一致使用，这将使使用者能够将其结果与全球其他使用者的结果进行比较，并便于未来的综述和荟萃分析。临床意义本综述强调标准评分和解释，对不同人群和环境中的临床医生和研究人员有用。
