Social, Behavioral, and Administrative Pharmacy, Touro College of Pharmacy, New York, NY, USA.
Emma Children's Hospital, Child and Adolescent Psychiatry & Psychosocial Care, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.
J Patient Rep Outcomes. 2024 Sep 30;8(1):113. doi: 10.1186/s41687-024-00745-5.
Using Patient Reported Outcome Measures (PROMs) in clinical settings can improve patient outcomes by enhancing communication between patient and provider. There has been significant improvements in the development of PROMs, their implementation in routine patient clinical care, training physicians and other healthcare providers to interpret the PROMs results to identify any issues reported by the patient, and to use the PROMs results to provide or modify the treatment.
Despite the increased use of PROMs, the lack of PROM completion by patients is a major concern in the optimal use of PROMs. Studies have shown several reasons why patients do not complete PROMs and one of the reasons is their lack of understanding of the significance of PROMs and their utility in their clinical care. While examining the various strategies that can be used to improve the uptake of PROM completion by patients, educating patients about the use of PROMs has been recommended. There is less evidence on how patients are trained or educated about PROMs. It may also be possible that the patient education strategies are not reported in the publications. This brings up the question of evaluation of the educational strategies used.
Our symposium at the 2023 ISOQOL conference brought together a range of experiences and learning around patient-centered PROMs educational activities used in the Netherlands, Canada, and the UK. This commentary is aimed to describe the lay of the land about educational activities around the use of PROMs in clinical care for patients, recognizing the gaps, and posing questions to be considered by the research and clinical community.
在临床环境中使用患者报告结局测量（PROMs）可以通过增强医患沟通来改善患者结局。PROMs 的发展取得了重大进展，其在常规患者临床护理中的实施、培训医生和其他医疗保健提供者以解释 PROMs 结果以识别患者报告的任何问题，以及使用 PROMs 结果提供或修改治疗。
尽管 PROM 的使用有所增加，但患者不完成 PROM 是 PROM 最佳使用的主要关注点。研究表明了患者不完成 PROM 的几个原因，其中一个原因是他们对 PROM 的重要性及其在临床护理中的效用缺乏理解。在研究可以用来提高患者完成 PROM 意愿的各种策略时，已经建议对患者进行有关 PROM 使用的教育。关于如何培训或教育患者使用 PROM 的证据较少。也有可能是患者教育策略未在出版物中报告。这就提出了关于所使用教育策略的评估问题。
我们在 2023 年 ISOQOL 会议上的研讨会汇集了荷兰、加拿大和英国在以患者为中心的 PROM 教育活动方面的一系列经验和学习。本评论旨在描述围绕患者在临床护理中使用 PROM 进行教育活动的现状，认识到差距，并提出研究和临床社区需要考虑的问题。
