UniSA Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.
Rosemary Bryant AO Research Centre, UniSA Clinical & Health Sciences, University of South Australia, Adelaide, South Australia, Australia.
PLoS One. 2022 Apr 21;17(4):e0267030. doi: 10.1371/journal.pone.0267030. eCollection 2022.
Patient-reported outcome measures (PROMs) or patient-reported outcomes (PROs) are used by clinicians in everyday clinical practice to assess patients' perceptions of their own health and the healthcare they receive. By providing insight into how illness and interventions impact on patients' lives, they can help to bridge the gap between clinicians' expectations and what matters most to the patient. Given increasing focus on patient-centred care, the objective of this meta-synthesis was to summarise the qualitative evidence regarding patients' perspectives and experiences of the use of PROMs in clinical care.
A systematic search of the following databases was undertaken in August 2020: Medline, EMBASE, EMCARE, PsychINFO, Scopus and the Cochrane Library. This review was conducted and reported in line with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. Methodological quality of the included studies was assessed using the Critical Appraisal Skills Programme checklist for qualitative research (CASP). A meta-ethnographic approach was used for data extraction and meta-synthesis of findings (PROSPERO registration: CRD42020202506).
Fourteen studies from a range of countries with differing qualitative research methodologies were identified. Three themes were identified, namely 'patient preferences regarding PROMs', 'patient perceived benefits' and 'barriers to patient engagement with PROMs'. The perspectives of patients suggested they preferred PROMs that were simple and relevant to their conditions and found benefits in the way they facilitated self-reflection and effective communication with their clinicians. Patients, however, questioned the relevance of some individual questions and purpose.
PROMs can be a useful tool in the clinical setting by enabling individualisation and patient centred care. This meta-synthesis provides insights into what patients find beneficial as well as barriers to their engagement, highlighting the importance of educating patients about PROMs.
患者报告的结局测量（PROMs）或患者报告的结果（PROs）被临床医生在日常临床实践中用于评估患者对自身健康和所接受医疗保健的看法。通过深入了解疾病和干预措施如何影响患者的生活，它们可以帮助弥合临床医生的期望与患者最关心的问题之间的差距。鉴于越来越关注以患者为中心的护理，本次荟萃分析的目的是总结关于患者在临床护理中使用 PROMs 的观点和体验的定性证据。
于 2020 年 8 月对以下数据库进行了系统检索：Medline、EMBASE、EMCARE、PsychINFO、Scopus 和 Cochrane 图书馆。本综述按照系统评价和荟萃分析的首选报告项目（PRISMA）声明进行了报告。使用定性研究的关键评估技能计划清单（CASP）评估纳入研究的方法学质量。采用元民族学方法提取和综合研究结果（PROSPERO 注册：CRD42020202506）。
确定了来自不同国家的 14 项具有不同定性研究方法的研究。确定了三个主题，即“患者对 PROMs 的偏好”、“患者感知的益处”和“患者参与 PROMs 的障碍”。患者的观点表明，他们更喜欢简单且与他们的病情相关的 PROMs，并发现它们有助于自我反思和与临床医生有效沟通。然而，患者对一些个别问题和目的的相关性提出了质疑。
PROMs 在临床环境中可以是一种有用的工具，通过实现个体化和以患者为中心的护理。本次荟萃分析提供了有关患者认为有益的内容以及参与障碍的见解，强调了对患者进行 PROMs 教育的重要性。
