Department of Sociology, Federal University Lokoja, Lokoja, Nigeria.
Department of Sociology, Usmanu Danfodiyo University, Sokoto, Nigeria.
Psychooncology. 2024 Oct;33(10):e9317. doi: 10.1002/pon.9317.
Despite the increasing burden of breast cancer in the developing world, there is a misunderstanding of the complex and multifaceted relationship between culture and cancer, particularly breast cancer. Hence, a dichotomy of illness narratives exists due to differential meaning making concerning breast cancer. While clinicians always recommend biomedical treatment, women with breast cancer often seek alternative treatment pathways.
To explore the experiences of women with breast cancer and clinicians in Nigeria on the dichotomy in the illness narratives.
This qualitative study used in-depth interviews and focus group discussion to explore the experiences of 22 women with breast cancer and 7 clinicians in Nigeria on the dichotomy in the illness narratives using grounded theory method analysis.
This study revealed that many women living with breast cancer (WLBC) hold health beliefs that are contradictory to the biomedical norm. They mostly sought treatment based on the perceived aetiology of breast cancer. The treatment pathway follows faith and traditional healing as alternatives or sometimes in combination with biomedicine. WLBC reported a constant fear of biomedical treatment, perceived to be harmful to women's sexuality, fertility and body image. Hence, after perceived treatment failure from alternative care, biomedical care becomes the last resort, usually at an advanced stage of breast cancer, often responsible for poor prognosis.
There is a dichotomy of illness construction between sufferers and health practitioners. To guide women with breast cancer on the path of care, modern care practitioners should consider some cultural norms and practices without compromising professional ethos.
尽管发展中国家的乳腺癌负担不断增加,但人们对文化和癌症之间复杂而多方面的关系存在误解,尤其是乳腺癌。因此,由于对乳腺癌的意义理解不同,存在着两种截然不同的疾病叙述。尽管临床医生总是推荐生物医学治疗,但乳腺癌患者常常寻求替代治疗途径。
探讨尼日利亚乳腺癌患者和临床医生对疾病叙述中的这种二分法的体验。
本定性研究采用深入访谈和焦点小组讨论的方法,使用扎根理论方法分析,探讨了 22 名乳腺癌患者和 7 名临床医生对疾病叙述中二分法的体验。
本研究表明,许多患有乳腺癌的女性(WLBC)持有与生物医学规范相矛盾的健康信念。她们大多根据乳腺癌的感知病因寻求治疗。治疗途径遵循信仰和传统疗法作为替代疗法,有时也与生物医学结合使用。WLBC 报告说,她们对生物医学治疗存在持续的恐惧,认为这对女性的性健康、生育能力和身体形象有害。因此,在替代治疗失败后,生物医学治疗成为最后的手段,通常是在乳腺癌晚期,这往往导致预后不良。
患者和医疗保健从业者对疾病的描述存在二分法。为了指导乳腺癌患者的护理路径,现代护理从业者应该考虑一些文化规范和实践,而不会损害专业精神。