Jackson Alexandra Malia, Muller Clemma Jacobsen, Okamoto Scott K, Weaver Raven H, Kim Steffi M, Haakenstad Magdalena, Pfeaster Cortney, Cachola Zowey, Oshiro Ashley, Ideue Kacyn, Schoenberg Nancy, Sinclair Ka'imi
Public Health, Pacific University, Forest Grove, OR, USA.
Elson S. Floyd College of Medicine, Washington State University, Seattle, WA, USA.
J Transcult Nurs. 2025 Mar;36(2):142-152. doi: 10.1177/10436596241286232. Epub 2024 Sep 30.
We aimed to describe the health and well-being of family caregivers of Native Hawaiian and Pacific Islander (NHPI) adults living with Alzheimer's disease and related dementias (ADRD), explore cultural values related to caregiving, and characterize barriers and facilitators to their health and well-being.
Caregivers of NHPIs living with ADRD were recruited from across the United States to complete a multimethod study including a survey followed by an interview about their health and well-being.
Eleven participants completed surveys, six of whom completed an interview. Themes included caring as a community, (balance), and the importance of sleep, food, and physical activity. Cultural values included connection to cultural practices, (elders) as cultural knowledge holders, and the (responsibility) of caregiving.
Caregiving for an NHPI adult living with ADRD occurs beyond the dyad, and is a matter of family and community. Culturally-based interventions offered through community and healthcare organizations may be critical to promoting caregiver health.
我们旨在描述患有阿尔茨海默病及相关痴呆症（ADRD）的夏威夷原住民和太平洋岛民（NHPI）成年人的家庭照顾者的健康状况和幸福程度，探索与照顾相关的文化价值观，并描述影响他们健康和幸福的障碍及促进因素。
从美国各地招募患有ADRD的NHPI的照顾者，以完成一项多方法研究，包括一项调查，随后进行一次关于他们健康和幸福的访谈。
11名参与者完成了调查，其中6人完成了访谈。主题包括作为社区的照顾、（平衡）以及睡眠、食物和体育活动的重要性。文化价值观包括与文化习俗的联系、作为文化知识持有者的（长辈）以及照顾的（责任）。
照顾患有ADRD的NHPI成年人超出了二元关系，是家庭和社区的事情。通过社区和医疗保健组织提供的基于文化的干预措施对于促进照顾者的健康可能至关重要。
