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网络应用程序对痴呆症患者照料者负担及痴呆症行为和心理症状影响的初步研究

Preliminary study of the effect of the web application on caregiver burden in dementia and behavioural and psychological symptoms of dementia.

作者信息

Goto Yasuyuki, Suematsu Mina, Imaizumi Takahiro, Suzuki Yusuke

机构信息

Department of Healthcare Administration, Nagoya University Graduate School of Medicine, Nagoya, Japan.

Education for Community-Oriented Medicine, Nagoya University Graduate School of Medicine, Nagoya, Japan.

出版信息

Nagoya J Med Sci. 2024 Aug;86(3):383-391. doi: 10.18999/nagjms.86.3.383.

Abstract

This study aimed to investigate if our web application could be a viable intervention for providing caregivers with information on resilient coping strategies for the reduction of their burden, thereby leading to the alleviation of behavioural and psychological symptoms of dementia (BPSD). We recruited outpatients with dementia and informal caregiver dyads at Nagoya University Hospital from April 2022 to October 2022. The caregivers were asked to have the web application installed on their smartphones during the study period and answer the following two self-administered questionnaires once a month for 3 months: (a) Abe's BPSD Score (ABS), which assesses BPSD, and (b) the Japanese version of the Zarit Caregiver Burden Interview (J-ZBI) score, which measures caregiver burden. Thirteen patients and informal caregiver dyads were enrolled in this study. The caregivers exchanged information on the care of patients with dementia in the virtual community using the web application during the study period. Upon entry, J-ZBI scores were correlated with ABSs (r = 0.65). Linear mixed-effects model revealed the average J-ZBI scores decreased over time with significance (p = 0.013), however, the average ABSs did not change during the study period. This is the first study to show that our web application reduces caregiver burden. However, to confirm the efficacy of our web application, further investigations are required.

摘要

本研究旨在调查我们的网络应用程序是否可以作为一种可行的干预措施,为护理人员提供关于弹性应对策略的信息,以减轻他们的负担,从而减轻痴呆症的行为和心理症状(BPSD)。我们于2022年4月至2022年10月在名古屋大学医院招募了患有痴呆症的门诊患者及其非正式护理人员。在研究期间,要求护理人员在其智能手机上安装该网络应用程序,并在3个月内每月回答以下两份自填式问卷:(a)评估BPSD的阿部BPSD评分(ABS),以及(b)测量护理人员负担的日语版扎里特护理人员负担访谈(J-ZBI)评分。本研究共纳入了13对患者及其非正式护理人员。在研究期间,护理人员使用该网络应用程序在虚拟社区中交流有关痴呆症患者护理的信息。入组时,J-ZBI评分与ABS评分相关(r = 0.65)。线性混合效应模型显示,J-ZBI平均评分随时间显著下降(p = 0.013),然而,在研究期间,ABS平均评分没有变化。这是第一项表明我们的网络应用程序可减轻护理人员负担的研究。然而,为了证实我们网络应用程序的疗效,还需要进一步的研究。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3923/11439610/a71c7c991df3/2186-3326-86-0383-g001.jpg

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