Division of Health Sciences and Nursing, Department of Family Nursing, Graduate School of Medicine, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan.
Division of Health Sciences and Nursing, Department of Community Health Nursing, Graduate School of Medicine, University of Tokyo, 7-3-1, Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan.
Aging Clin Exp Res. 2019 Dec;31(12):1807-1816. doi: 10.1007/s40520-019-01129-2. Epub 2019 Jan 29.
Several studies have shown the effectiveness and diversity of dementia cafés, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia cafés in Japan.
Interviews and participant observations were conducted in nine dementia cafés. Study participants were persons with dementia, their caregivers, and the staff in dementia cafés. Data were analysed using qualitative content analysis.
A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia café. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers' experiences; and to keep in touch with others inside and outside of the dementia café. The needs of persons with dementia and family caregivers differ partly.
Dementia cafés should create programmes and comfortable environments answering to the differences of their needs.
多项研究表明，痴呆症咖啡馆具有有效性和多样性，而在学术研究中，关注痴呆症患者及其家庭照顾者的需求以及所提供的服务是否满足这些需求的文章却很少。本研究旨在确定参与日本痴呆症咖啡馆的痴呆症患者及其家庭照顾者的需求。
在九个痴呆症咖啡馆中进行了访谈和参与者观察。研究参与者包括痴呆症患者、他们的照顾者以及痴呆症咖啡馆的工作人员。使用定性内容分析对数据进行分析。
共招募了 24 名参与者。痴呆症患者的需求分为五类：表达对当前状况的感受；通过考虑他们的身体和认知状况来适应；注意健康状况的变化；享受娱乐；并与痴呆症咖啡馆内外的其他人保持联系。家庭照顾者的需求分为四类：表达焦虑、内疚和对照顾的抱怨等感受；咨询日常生活中的困难；听取其他家庭照顾者的经验；并与痴呆症咖啡馆内外的其他人保持联系。痴呆症患者和家庭照顾者的需求部分不同。
痴呆症咖啡馆应根据其需求的差异，制定相应的方案和创造舒适的环境。
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