Institute of Ethnology and Social Anthropology, Slovak Academy of Sciences, Bratislava, Slovakia.
Department of Community and Occupational Medicine, University Medical Center Groningen University of Groningen, Groningen, the Netherlands; Kosice Institute for Society and Health, Faculty of Medicine, P.J. Safarik University Kosice, Slovakia; Olomouc University Social Health Institute, Palacky University Olomouc, Olomouc, Czech Republic.
Soc Sci Med. 2024 Nov;360:117322. doi: 10.1016/j.socscimed.2024.117322. Epub 2024 Sep 13.
Roma represent one of the largest ethnic groups facing marginalization worldwide. However, significant knowledge gaps persist regarding: A) the social mechanisms supporting health-endangering practices among Roma; B) the social mechanisms adversely affecting their use of health services; and C) the social determinants underlying both above pathways. To fill these gaps, we conducted a series of four explorative ethnographic studies spanning over ten years. Beginning in 2004, the series involved 260 participants, including segregated Roma and health services staff in Slovakia. Of the four studies, two addressed gap A, two addressed gap B, and all addressed gap C. Regarding pathway A, we found that Roma in segregated Roma enclaves can be socialized into ethnically framed racialized ideologies that oppose the cultural standards of local non-Roma life, including certain healthy practices. This adherence to counter-cultural ideals of Roma identity increases specific health and care challenges. Regarding pathway B, we discovered that health service frontliners frequently lack any organizational support to better understand and accommodate the current living conditions and practices of segregated Roma, as well as their own and others' racism and professional expectations regarding equity. This lack of support leads many frontliners to become cynical about segregated Roma over their careers, resulting in health services being less effective and exacerbating health problems for both Roma and the frontliners themselves. Concerning pathway C, we found that the societal omnipresence of antigypsyism - racist and racialized anti-Roma ideas and sentiments - serves as a prominent driver of both the above pathways. We conclude that much of the unfavorable health status of Roma can be understood via a systems perspective that embraces structural racism.
罗姆人是全球面临边缘化的最大族群之一。然而,在以下方面仍存在显著的知识差距:A)支持罗姆人危害健康行为的社会机制;B)对其使用卫生服务产生不利影响的社会机制;以及 C)上述两种途径背后的社会决定因素。为了填补这些空白,我们进行了一系列历时十年的四项探索性民族志研究。该系列始于 2004 年,涉及 260 名参与者,包括斯洛伐克的隔离罗姆人和卫生服务人员。在这四项研究中,两项研究涉及差距 A,两项研究涉及差距 B,所有研究都涉及差距 C。关于途径 A,我们发现,处于隔离罗姆人飞地的罗姆人可能会被社会化,形成反对当地非罗姆人生活文化标准的种族主义意识形态,包括某些健康实践。这种对反文化的罗姆人身份认同的坚持,增加了特定的健康和护理挑战。关于途径 B,我们发现,卫生服务一线人员经常缺乏任何组织支持,以更好地理解和适应隔离罗姆人的当前生活条件和实践,以及他们自己和他人对公平的种族主义和职业期望。这种缺乏支持导致许多一线人员在职业生涯中对隔离罗姆人变得愤世嫉俗,导致卫生服务效果不佳,并加剧罗姆人和一线人员自身的健康问题。关于途径 C,我们发现,反吉普赛主义——针对罗姆人的种族主义和种族主义观念和情绪——在很大程度上是上述两种途径的驱动因素。我们的结论是,罗姆人不利的健康状况在很大程度上可以通过一种系统的观点来理解,这种观点包括结构性种族主义。