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队列简介:通过西澳大利亚原住民儿童健康调查(WAACHS)关联数据研究,了解早期生活环境以及健康和社会服务系统接触随时间推移和跨代的影响。

Cohort profile: Understanding the influence of early life environments and health and social service system contacts over time and across generations through the Western Australian Aboriginal Child Health Survey (WAACHS) Linked Data Study.

作者信息

Mitrou Francis, Milroy Helen, Coffin Juli, Hamilton Sharynne L, Brennan-Jones Christopher G, Schurer Stefanie, Davis Elizabeth A, Richmond Peter, Passmore Hayley M, Pearson Glenn, Brown Alex, O'Donnell Melissa, Bowen Asha C, Azzopardi Peter, Conigrave Katherine M, Downs Jenny, Cooper Matthew M, Ramsey Kathryn A, Ferrante Anna, Johnson Sarah E, Cave Leah, Vlaskovsky Philip, Hopkins Katrina D, D'Antoine Heather A, Wilkes Ted, Zubrick Stephen R

机构信息

Population Health, The Kids Research Institute Australia, Perth, WA, Australia.

Centre for Child Health Research, The University of Western Australia, Perth, WA, Australia.

出版信息

BMJ Open. 2024 Oct 2;14(10):e087522. doi: 10.1136/bmjopen-2024-087522.

Abstract

PURPOSE

Despite the volume of accumulating knowledge from prospective Aboriginal cohort studies, longitudinal data describing developmental trajectories in health and well-being is limited. The linkage of child and carer cohorts from a historical cross-sectional survey with longitudinal health-service and social-service administrative data has created a unique and powerful data resource that underpins the Western Australian Aboriginal Child Health Survey (WAACHS) linked data study. This study aims to provide evidence-based information to Aboriginal communities across Western Australia, governments and non-government agencies on the heterogeneous life trajectories of Aboriginal children and families.

PARTICIPANTS

This study comprises data from a historical cross-sectional household study of 5289 Aboriginal children from the WAACHS (2000-2002) alongside their primary (N=2113) and other (N=1040) carers, and other householders. WAACHS data were linked with Western Australia (WA) government administrative datasets up to 2020 including health, education, child protection, police and justice system contacts. The study also includes two non-Aboriginal cohorts from WA, linked with the same administrative data sources allowing comparisons of outcomes across cohorts in addition to between-group comparisons within the Aboriginal population.

FINDINGS TO DATE

Linked data coverage rates are presented for all WAACHS participants. Child health outcomes for the WAACHS children (Cohort 1) are described from birth into adulthood along with other outcomes including child protection and juvenile justice involvement.

FUTURE PLANS

Analysis of data from both the child and carer cohorts will seek to understand the contribution of individual, family (intergenerational) and community-level influences on Aboriginal children's developmental and health pathways, identify key developmental transitions or turning points where interventions may be most effective in improving outcomes, and compare service pathways for Aboriginal and non-Aboriginal children. All research is guided by Aboriginal governance processes and study outputs will be produced with Aboriginal leadership to guide culturally appropriate policy and practice for improving health, education and social outcomes.

摘要

目的

尽管前瞻性原住民队列研究积累了大量知识,但描述健康与幸福发展轨迹的纵向数据仍然有限。将一项历史横断面调查中的儿童和照料者队列与纵向健康服务和社会服务管理数据相链接,创建了一个独特且强大的数据资源,为西澳大利亚原住民儿童健康调查(WAACHS)链接数据研究提供了支持。本研究旨在为西澳大利亚的原住民社区、政府和非政府机构提供基于证据的信息,以了解原住民儿童和家庭的异质生活轨迹。

参与者

本研究包含来自WAACHS(2000 - 2002年)对5289名原住民儿童及其主要照料者(N = 2113)、其他照料者(N = 1040)以及其他住户进行的历史横断面家庭研究的数据。WAACHS数据与截至2020年的西澳大利亚(WA)政府管理数据集相链接,包括健康、教育、儿童保护、警方和司法系统接触记录。该研究还包括来自WA的两个非原住民队列,它们与相同的管理数据源相链接,这不仅允许在原住民群体内部进行组间比较,还能对不同队列的结果进行比较。

迄今的发现

呈现了所有WAACHS参与者的链接数据覆盖率。描述了WAACHS儿童(队列1)从出生到成年的儿童健康结果以及其他结果,包括儿童保护和青少年司法介入情况。

未来计划

对儿童和照料者队列的数据进行分析,旨在了解个人、家庭(代际)和社区层面的影响对原住民儿童发展和健康路径的作用,确定干预措施可能最有效地改善结果的关键发展过渡或转折点,并比较原住民和非原住民儿童的服务路径。所有研究都以原住民治理流程为指导,研究成果将在原住民的领导下产生,以指导促进健康、教育和社会成果的文化适宜政策和实践。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec36/11448163/ee22aac79469/bmjopen-14-10-g001.jpg

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