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研究方案:马伊·库瓦尤研究,一项关于原住民和托雷斯海峡岛民福祉的全国性纵向研究。

Study protocol: , the Mayi Kuwayu Study, a national longitudinal study of Aboriginal and Torres Strait Islander wellbeing.

作者信息

Jones Roxanne, Thurber Katherine A, Chapman Jan, D'Este Catherine, Dunbar Terry, Wenitong Mark, Eades Sandra J, Strelein Lisa, Davey Maureen, Du Wei, Olsen Anna, Smylie Janet K, Banks Emily, Lovett Raymond

机构信息

National Centre for Epidemiology and Population Health, Research School of Population Health, The Australian National University, Acton, Australia.

University of Adelaide, Adelaide, South Australia, Australia.

出版信息

BMJ Open. 2018 Jun 27;8(6):e023861. doi: 10.1136/bmjopen-2018-023861.

Abstract

INTRODUCTION

Aboriginal and Torres Strait Islander peoples are Australia's first peoples and have been connected to the land for ≥65 000 years. Their enduring cultures and values are considered critical to health and wellbeing, alongside physical, psychological and social factors. We currently lack large-scale data that adequately represent the experiences of Aboriginal and Torres Strait Islander people; the absence of evidence on cultural practice and expression is particularly striking, given its foundational importance to wellbeing.

METHOD AND ANALYSIS

Mayi Kuwayu: The National Study of Aboriginal and Torres Strait Islander Wellbeing (Mayi Kuwayu Study) will be a large-scale, national longitudinal study of Aboriginal and Torres Strait Islander adults, with linkage to health-related administrative records. The baseline survey was developed through extensive community consultation, and includes items on: cultural practice and expression, sociodemographic factors, health and wellbeing, health behaviours, experiences and environments, and family support and connection. The baseline survey will be mailed to 200 000 Aboriginal and Torres Strait Islander adults (≥16 years), yielding an estimated 16 000-40 000 participants, supplemented through face-to-face recruitment. Follow-up surveys will be conducted every 3-5 years, or as funding allows. The Mayi Kuwayu Study will contribute to filling key evidence gaps, including quantifying the contribution of cultural factors to wellbeing, alongside standard elements of health and risk.

ETHICS AND DISSEMINATION

This study has received approval from national Human Research Ethics Committees, and from State and Territory committees, including relevant Aboriginal and Torres Strait Islander organisations. The study was developed and is conducted in partnership with Aboriginal and Torres Strait Islander organisations across states and territories. It will provide an enduring and shared infrastructure to underpin programme and policy development, based on measures and values important to Aboriginal and Torres Strait Islander peoples. Approved researchers can access confidentialised data and disseminate findings according to study data access and governance protocols.

摘要

引言

原住民和托雷斯海峡岛民是澳大利亚的第一批居民,他们与这片土地的联系已有至少65000年。除了身体、心理和社会因素外,他们长久以来的文化和价值观对健康和幸福也至关重要。目前,我们缺乏能充分反映原住民和托雷斯海峡岛民经历的大规模数据;鉴于文化实践和表达对幸福的基础性重要意义,缺乏这方面的证据尤其明显。

方法与分析

“玛伊·库瓦尤:原住民和托雷斯海峡岛民幸福状况全国研究”(玛伊·库瓦尤研究)将是一项针对原住民和托雷斯海峡岛民成年人的大规模全国纵向研究,并与健康相关行政记录相联系。基线调查通过广泛的社区协商制定,包括以下方面的项目:文化实践和表达、社会人口因素、健康与幸福、健康行为、经历与环境以及家庭支持与联系。基线调查将邮寄给20万名原住民和托雷斯海峡岛民成年人(16岁及以上),预计有16000 - 40000名参与者,并通过面对面招募进行补充。后续调查将每3 - 5年进行一次,或视资金情况而定。玛伊·库瓦尤研究将有助于填补关键证据空白,包括量化文化因素对幸福的贡献以及健康和风险的标准要素。

伦理与传播

本研究已获得国家人类研究伦理委员会以及州和领地委员会(包括相关原住民和托雷斯海峡岛民组织)的批准。该研究是与各州和领地的原住民和托雷斯海峡岛民组织合作开展的。它将提供一个持久且共享的基础设施,以支持基于对原住民和托雷斯海峡岛民重要的措施和价值观的项目和政策制定。经批准的研究人员可以根据研究数据访问和管理协议访问保密数据并传播研究结果。

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