Torke Alexia M, Varner-Perez Shelley, Burke Emily S, Comer Amber R, Conrad Susan, Crawley LaVera, Ejem Deborah, Gabbard Jennifer, Kelly Patricia E, Marterre Buddy, Modrykamien Ariel, Monahan Patrick O, Nouri Sarah, Szilagyi Csaba, White Douglas, Fitchett George
Indiana University Center for Aging Research, Regenstrief Institute, Indianapolis, Indiana, USA.
Daniel F. Evans Center for Spiritual and Religious Values in Healthcare, Indiana University Health, Indianapolis, Indiana, USA.
J Palliat Med. 2025 Apr;28(4):538-548. doi: 10.1089/jpm.2024.0165. Epub 2024 Oct 4.
Having a family member hospitalized in the intensive care unit (ICU) can be a stressful experience for family members, encompassing both psychological and spiritual distress. With over 5 million ICU admissions annually in the United States, it is imperative to enhance the experiences and coping mechanisms of ICU family members. In particularly challenging situations, some family members even face psychological effects known as post-intensive care syndrome-family, which includes anxiety, depression, and posttraumatic stress. The distress may be worsened when patients and families experience poor communication or medical care, which has been shown to be more common among minoritized populations including Black and Hispanic patients and families. Family members' emotional and spiritual distress also has an effect on the medical decisions they make for the patient. While research has delved into the impact of spiritual care for ICU family members, further investigation is still needed to determine the most effective approaches for delivering such care. This narrative review will describe a conceptual model aimed at guiding future research in this endeavor. The model proposes that chaplains provide emotional, spiritual, and information support to ICU family members. This affects both their ICU experience, decision making, and outcomes for the patient and family. This process is also affected by characteristics of the family such as race, ethnicity, and economic status. This model helps identify gaps in research, including the need for randomized trials of spiritual care that identify mechanisms underlying outcomes and demonstrate impact of spiritual care, and consider race, ethnicity, and other characteristics.
家庭成员在重症监护病房(ICU)住院,对其家人来说可能是一段压力巨大的经历,会带来心理和精神上的痛苦。在美国,每年有超过500万人入住ICU,因此必须改善ICU患者家属的体验和应对机制。在特别具有挑战性的情况下,一些家庭成员甚至会面临被称为重症监护后综合征-家属的心理影响,其中包括焦虑、抑郁和创伤后应激反应。当患者及其家属经历沟通不畅或医疗护理不佳时,这种痛苦可能会加剧,事实证明,这种情况在包括黑人和西班牙裔患者及其家属在内的少数族裔人群中更为常见。家庭成员的情绪和精神痛苦也会影响他们为患者做出的医疗决策。虽然已有研究深入探讨了精神关怀对ICU患者家属的影响,但仍需要进一步调查,以确定提供此类关怀的最有效方法。这篇叙述性综述将描述一个概念模型,旨在指导这一领域的未来研究。该模型提出,牧师要为ICU患者家属提供情感、精神和信息支持。这会影响他们在ICU的体验、决策以及患者和家属的治疗结果。这一过程还会受到家庭特征的影响,如种族、民族和经济状况。该模型有助于找出研究中的空白,包括需要开展精神关怀的随机试验,以确定结果背后的机制并证明精神关怀的影响,同时考虑种族、民族和其他特征。