Duran Songül, Aydogdu Arzu
İzmir Demokrasi University, Health Services Vocational College, Care of Elderly Program, İzmir, Türkiye.
İstanbul Faculty of Medicine, Department of Psychiatry, Consultation Liaison Psychiatry Department, İstanbul, Türkiye.
Health Educ Res. 2025 Feb 19;40(1). doi: 10.1093/her/cyae031.
Patients diagnosed with amyotrophic lateral sclerosis (ALS) become dependent on caregivers to meet their daily needs and perform personal care activities. For this reason, ALS is a disease that can challenge both the patient and the caregiver physically, mentally and socially. Supporting the caregiver indirectly affects the patient's quality of care and mental well-being. Therefore, this study aimed to determine the effect of a structured psychoeducation program on coping with stress, psychological resilience and self-compassion in caregivers of ALS patients. This quasi-experimental study with a pre-test-post-test control group was conducted with caregivers of 62 ALS patients in Türkiye. The study was conducted between July 2023 and February 2024. A psychoeducation program was applied to five different groups via zoom application for 6 weeks each. The survey form, Perceived Stress Scale, Brief Resilience Scale and Short Form of Self-Compassion Questionnaire were used as measurement tools. The chi-squared test and paired samples t-test were used to analyze the data. While there was no significant difference between the intervention group and the control group in the pre-test in terms of their mean scores on the coping with stress inventory, short psychological resilience scale and self-compassion scale, at the post-test, psychological resilience and self-compassion scores were significantly higher in the intervention group. This study revealed that psychoeducational programs that support caregivers are effective in increasing psychological resilience and self-compassion.
被诊断患有肌萎缩侧索硬化症（ALS）的患者变得依赖照料者来满足他们的日常需求并进行个人护理活动。因此，ALS是一种在身体、心理和社会方面都会给患者和照料者带来挑战的疾病。支持照料者会间接影响患者的护理质量和心理健康。因此，本研究旨在确定结构化心理教育项目对ALS患者照料者应对压力、心理复原力和自我同情的影响。这项采用前后测对照组的准实验研究是在土耳其对62名ALS患者的照料者进行的。研究于2023年7月至2024年2月进行。通过Zoom应用程序对五个不同的组实施了为期6周的心理教育项目。使用调查问卷、感知压力量表、简短复原力量表和自我同情问卷简表作为测量工具。采用卡方检验和配对样本t检验对数据进行分析。在应对压力量表、简短心理复原力量表和自我同情量表的平均得分方面，干预组和对照组在预测试中没有显著差异，但在 post-test中，干预组的心理复原力和自我同情得分显著更高。本研究表明，支持照料者的心理教育项目在提高心理复原力和自我同情方面是有效的。
