Thompson Claire, Moss Simon Andrew, Hooper Mary-Ellen, Kurz Ella, Ladbrook Elyse, Bushell Mary
Faculty of Health, University of Canberra, Canberra, Australia.
Graduate Research School, University of Wollongong, Wollongong, Australia.
Disabil Rehabil. 2025 Jun;47(12):3049-3056. doi: 10.1080/09638288.2024.2410989. Epub 2024 Oct 6.
While stroke is becoming increasingly prevalent in young people (<65 years), diagnosis, treatment, rehabilitation, and management continue to reflect the needs of older people. This study aimed to characterise and appreciate the healthcare experiences of young stroke survivors, whose needs and trajectories differ from those of older people.
Qualitative in-depth semi-structured interviews were conducted with 11 stroke survivors aged 18-49 using virtual conferencing software. The data were analysed using interpretative phenomenological analysis.
Four main themes were identified that reflect the experiences and needs of young stroke survivors and are (1) The health system overlooks the experiences and needs of young stroke survivors; (2) Support is fragmented rather than holistic; (3) Feelings of helplessness at a time agency is required; and (4) Positive attitudes despite challenges.
The experiences of young stroke survivors are distinct. Health services that consider the unique trajectories of young stroke survivors will better facilitate rehabilitation and support for this population.
虽然中风在年轻人（<65岁）中越来越普遍，但诊断、治疗、康复和管理仍反映出老年人的需求。本研究旨在描述并了解年轻中风幸存者的医疗经历，他们的需求和病程与老年人不同。
使用虚拟会议软件对11名年龄在18 - 49岁的中风幸存者进行了定性深入半结构化访谈。采用解释性现象学分析对数据进行分析。
确定了四个主要主题，反映了年轻中风幸存者的经历和需求，分别是：（1）卫生系统忽视了年轻中风幸存者的经历和需求；（2）支持是零散的而非全面的；（3）在需要时间能动性的时候感到无助；（4）尽管面临挑战仍保持积极态度。
年轻中风幸存者的经历是独特的。考虑到年轻中风幸存者独特病程的卫生服务将更好地促进对这一人群的康复和支持。
