Biard Marie, Detcheverry Flavie E, Betzner William, Becker Sara, Grewal Karl S, Azab Sandi, Bloniasz Patrick F, Mazerolle Erin L, Phelps Jolene, Smith Eric E, Badhwar AmanPreet
medRxiv. 2024 Sep 18:2024.09.17.24312581. doi: 10.1101/2024.09.17.24312581.
Living with dementia requires decision-making about numerous topics including daily activities, such as advance care planning (ACP). Both individuals living with dementia and care partners require informed support for decision-making. We conducted an umbrella review to assess knowledge translation (KT) interventions supporting decision-making for individuals living with dementia and their informal care partners. Four databases were searched using 50 different search-terms, identifying 22 reviews presenting 32 KT interventions. The most common KT decision topic was ACP (N=21) which includes advanced care directives, feeding options, and placement in long-term care. The majority of KT interventions targeted care partners only (N=16), or both care partners and individuals living with dementia (N=13), with fewer interventions (N=3) targeting individuals living with dementia. Overall, our umbrella review offers insights into the beneficial impacts of KT interventions, such as increased knowledge and confidence, and decreased decisional conflicts.
与痴呆症共处需要就众多话题做出决策，包括日常活动，如预先护理计划（ACP）。患有痴呆症的个人及其护理伙伴在决策时都需要明智的支持。我们进行了一项综合综述，以评估支持痴呆症患者及其非正式护理伙伴决策的知识转化（KT）干预措施。使用50个不同的搜索词对四个数据库进行了搜索，确定了22篇综述，其中介绍了32项KT干预措施。最常见的KT决策主题是ACP（N = 21），其中包括高级护理指令、喂养选择以及长期护理安置。大多数KT干预措施仅针对护理伙伴（N = 16），或同时针对护理伙伴和痴呆症患者（N = 13），而针对痴呆症患者的干预措施较少（N = 3）。总体而言，我们的综合综述提供了关于KT干预措施有益影响的见解，如知识增加、信心增强以及决策冲突减少。
