Bryant Madeleine J, Black Rachel J, Lester Susan, Chand Vibhasha, Barrett Claire, Buchbinder Rachelle, Lassere Marissa, March Lyn, Hill Catherine L
School of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.
Rheumatology Unit, Queen Elizabeth Hospital, Central Adelaide Local Health Network, Adelaide, South Australia, Australia.
Rheumatol Adv Pract. 2024 Aug 17;8(4):rkae099. doi: 10.1093/rap/rkae099. eCollection 2024.
To evaluate the reliability and validity of an adapted Commissioning for Quality in Rheumatoid Arthritis-RA-Patient-Reported Experience Measure (CQRA-RA-PREM) for assessing care experience in an Australian rheumatology outpatient cohort.
Individual patient interviews were performed to check the language and completion time of the CQRA-RA-PREM before modification. Australian Rheumatology Association Database (ARAD) participants completed the CQRA-PREM-Australian version (CQRA-PREM-AU) (22 items, 5 domains), disease activity measure (RAPID-3, BASDAI) and Assessment of Quality of Life (AQOL-6D) index. Exploratory factor analysis (EFA) assessed item correlation. Cronbach's α assessed internal consistency.
Individual patient interviews ( = 8, 62% male, mean age 50 years, mean disease duration 4.5 years) informed CQRA-RA-PREM modification. The ARAD survey response rate was 707/1124 (63%); 459 (65%) RA, 134 (19%) PsA, 114 (16%) AS; 67% female, mean age 62 years, mean disease duration 22 years. The median instrument completion time was 299 s (interquartile range 284-414). Scoring of responses allowed an averaged overall score. EFA extracted five factors: all items loading similarly onto factor 1, indicating validity of the overall score. The CQRA-PREM-AU score correlated with the AQOL-6D score (ρ = 0.23, < 0.01); partial correlation with disease activity was not significant (ρ = 0.03, = 0.45), indicating divergent validity. Reliability was comparable across disease subgroups (Cronbach's α >0.94). The mean overall score did not differ by disease subgroup [4.1 (s.d. 0.6, = 0.73) and there was no floor/ceiling effect.
CQRA-PREM-AU is a valid and reliable instrument to measure self-reported care experience in Australian rheumatology patients and may be interpreted as an average overall numerical score.
评估一种经过改编的类风湿性关节炎患者报告体验测量工具（CQRA-RA-PREM）在评估澳大利亚风湿病门诊队列护理体验方面的信度和效度。
在修改之前，进行个体患者访谈以检查CQRA-RA-PREM的语言和完成时间。澳大利亚风湿病协会数据库（ARAD）的参与者完成了CQRA-PREM澳大利亚版（CQRA-PREM-AU）（22项，5个领域）、疾病活动度测量工具（RAPID-3、BASDAI）和生活质量评估（AQOL-6D）指数。探索性因素分析（EFA）评估项目相关性。Cronbach's α评估内部一致性。
个体患者访谈（n = 8，62%为男性，平均年龄50岁，平均病程4.5年）为CQRA-RA-PREM的修改提供了依据。ARAD调查的回复率为707/1124（63%）；459例（65%）类风湿性关节炎，134例（19%）银屑病关节炎，114例（16%）强直性脊柱炎；67%为女性，平均年龄62岁，平均病程22年。工具完成时间的中位数为299秒（四分位间距284 - 414）。对回答进行评分可得出平均总分。探索性因素分析提取出五个因素：所有项目在因素1上的载荷相似，表明总分的效度。CQRA-PREM-AU得分与AQOL-6D得分相关（ρ = 0.23，P < 0.01）；与疾病活动度的偏相关不显著（ρ = 0.03，P = 0.45），表明具有区分效度。各疾病亚组的信度相当（Cronbach's α > 0.94）。各疾病亚组之间的平均总分无差异[4.1（标准差0.6，P = 0.73）]，且无地板效应/天花板效应。
CQRA-PREM-AU是一种有效且可靠的工具，可用于测量澳大利亚风湿病患者自我报告的护理体验，并且可以解释为平均总体数值得分。
