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共同决策对家庭对重症监护服务满意度的影响:“关怀共享”在重症监护室有了新含义。

Impact of Shared Decision-Making on Family Satisfaction With Intensive Care Services: 'Share With Care' has a New Meaning in ICU.

作者信息

Bhatt Margiben Tusharbhai, Chaudhuri Souvik, Ravindranath Sunil, Atri Viha, Maddani Sagar Shanmukhappa, P Vishwas, Fernandes Roshan

机构信息

Department of Critical Care Medicine, Kasturba Medical College, Manipal Academy of Higher Education, Manipal, India.

出版信息

Am J Hosp Palliat Care. 2025 Sep;42(9):889-898. doi: 10.1177/10499091241287861. Epub 2024 Oct 9.

DOI:10.1177/10499091241287861
PMID:39382903
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12290231/
Abstract

Physician's clinical inputs and informed bystander opinions are essential for successful intensive care unit (ICU) patient outcomes. There is insufficient data regarding the impact of shared decision-making on treatment outcomes and family satisfaction in Indian ICU settings. We aimed to determine the effect of shared decision-making factors on family satisfaction with ICU services. Family bystanders of 336 ICU patients with a stay >72 hours were conveniently surveyed across 13 months prospectively using Family Satisfaction in the Intensive Care Unit 24 Revised (FS-ICU 24R) questionnaire. We analyzed the responses to determine shared decision-making factors impacting family satisfaction. Univariate analysis of ten variables of FS-ICU 24R questionnaire decision-making subscale revealed that consistency of information (OR 8.71, < 0.001), honesty of information (OR 7.04, < 0.001), and frequency of communication with doctors (OR 6.25, < 0.001) were associated with highest odds of family involvement and satisfaction. Multivariable logistic regression showed that consistency of information (adjusted OR 3.85, < 0.001) and frequent doctor communication (adjusted OR 2.22, = 0.02) were independent predictors associated with family satisfaction. The number of decision-makers ( = 0.463) or family's prior ICU experience ( = 0.430) was not associated with family satisfaction. A consistent and honest effort to cater to the family's information needs and frequent physician-bystander interaction is essential for family's satisfaction with ICU services. This even outweighs other decision-making factors such as number of decision-makers and their prior ICU experience. Incorporating shared decision-making in counseling should be a continuing practice. Clinical Trials Registry - India. CTRI/2022/09/045571.

摘要

医生的临床意见和旁观者的知情意见对于重症监护病房(ICU)患者的成功治疗结果至关重要。关于共同决策对印度ICU环境中治疗结果和患者家属满意度的影响,目前数据不足。我们旨在确定共同决策因素对患者家属对ICU服务满意度的影响。前瞻性地在13个月内,对336名入住ICU超过72小时患者的家属旁观者使用《重症监护病房患者家属满意度调查问卷24修订版》(FS-ICU 24R)进行了方便抽样调查。我们分析了这些回答,以确定影响家属满意度的共同决策因素。对FS-ICU 24R问卷决策子量表的10个变量进行单因素分析显示,信息一致性(OR 8.71,<0.001)、信息真实性(OR 7.04,<0.001)以及与医生沟通的频率(OR 6.25,<0.001)与家属参与度和满意度的最高几率相关。多变量逻辑回归显示,信息一致性(调整后OR 3.85,<0.001)和频繁的医患沟通(调整后OR 2.22,=0.02)是与家属满意度相关的独立预测因素。决策者数量(=0.463)或家属之前的ICU经历(=0.430)与家属满意度无关。持续、真诚地满足家属的信息需求以及医生与旁观者之间的频繁互动对于家属对ICU服务的满意度至关重要。这甚至比其他决策因素(如决策者数量及其之前的ICU经历)更为重要。在咨询过程中纳入共同决策应该是一种持续的做法。印度临床试验注册中心。CTRI/2022/09/045571。

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本文引用的文献

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Family's Perceived Needs and Satisfaction with Intensive Care Services: A Questionnaire-based Prospective Observational Study.家庭对重症监护服务的感知需求与满意度:一项基于问卷调查的前瞻性观察研究。
Indian J Crit Care Med. 2024 May;28(5):483-494. doi: 10.5005/jp-journals-10071-24621.
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Family members' perceptions of surrogate decision-making in the intensive care unit: A systematic review.家庭成员对重症监护病房中替代决策的看法:一项系统综述。
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Can We Satisfy Family in Intensive Care Unit? A Tunisian Experience.
我们能让重症监护病房的患者家属满意吗?突尼斯的经验。
Indian J Crit Care Med. 2022 Feb;26(2):185-191. doi: 10.5005/jp-journals-10071-24104.
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Families of patients in ICU: A Scoping review of their needs and satisfaction with care.重症监护病房患者的家属:对其需求及护理满意度的范围综述
Nurs Open. 2019 May 18;6(3):698-712. doi: 10.1002/nop2.287. eCollection 2019 Jul.
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Predictors of Depression and Anxiety in Family Members 3 Months After Child's Admission to a Pediatric ICU.儿童入住儿科重症监护病房3个月后家庭成员抑郁和焦虑的预测因素
Am J Hosp Palliat Care. 2019 Oct;36(10):841-850. doi: 10.1177/1049909119859517. Epub 2019 Jun 30.
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Long-term follow-up for Psychological stRess in Intensive CarE (PRICE) survivors: study protocol for a multicentre, prospective observational cohort study in Australian intensive care units.长期随访重症监护心理应激(PRICE)幸存者:澳大利亚重症监护病房多中心前瞻性观察队列研究方案。
BMJ Open. 2019 Jan 25;9(1):e023310. doi: 10.1136/bmjopen-2018-023310.
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From breaking point to breakthrough during the ICU stay: A qualitative study of family members' experiences of long-term intensive care patients' pathways towards survival.从重症监护病房的崩溃点到突破点:一项定性研究,探讨了长期接受重症监护的患者走向生存之路的家属的体验。
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8
Definition of Terms Used in Limitation of Treatment and Providing Palliative Care at the End of Life: The Indian Council of Medical Research Commission Report.临终时治疗限制与提供姑息治疗中所用术语的定义:印度医学研究理事会委员会报告
Indian J Crit Care Med. 2018 Apr;22(4):249-262. doi: 10.4103/ijccm.IJCCM_165_18.
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The Advance Directives and Foregoing of Life Support: Where do we Stand Now?生前预嘱与放弃生命支持:我们目前的状况如何?
Indian J Crit Care Med. 2018 Mar;22(3):135-137. doi: 10.4103/ijccm.IJCCM_116_18.
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Impact of prior ICU experience on ICU patient family members' psychological distress: A descriptive study.既往重症监护病房(ICU)经历对ICU患者家属心理困扰的影响:一项描述性研究。
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