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“母亲身份迫使我应对自身残疾问题”:身体残疾母亲群体中的身份认同交叉性

"Motherhood forced me to cope with my disability": identity intersection among mothers with physical disabilities.

作者信息

Shpigelman Carmit-Noa, Karlinski Argi Limor

机构信息

Department of Community Mental Health, University of Haifa, Haifa, Israel.

The Center for Mental Health Research, Practice, and Policy, University of Haifa, Haifa, Israel.

出版信息

Front Psychol. 2024 Sep 25;15:1430412. doi: 10.3389/fpsyg.2024.1430412. eCollection 2024.

DOI:10.3389/fpsyg.2024.1430412
PMID:39386135
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11461256/
Abstract

BACKGROUND

Although motherhood plays a meaningful role in the formation of a woman's identity, most studies have focused on the process of identity transformation in the transition to motherhood among non-disabled women; less is known about this process among women with physical disabilities who become mothers.

OBJECTIVE

The present study aimed to understand and describe the subjective experiences of Israeli women with lifelong physical disabilities in their motherhood journey from the perspective of the intersection of their motherhood and disability identities, and from the disability studies approach.

METHODS

Semi-structured interviews were conducted with 20 Israeli mothers with visible lifelong physical disabilities who live in the community and raise their children.

RESULTS

Three themes emerged from the interviews: (1) the decision to become a mother: Coping with the disability identity for the first time; (2) The FIRST 3 years: Depending on others as limiting their motherhood identity; (3) after age three: Balancing the motherhood and disability identities.

CONCLUSION

The transition to motherhood led to identity transformation among women with physical disabilities. Becoming a mother increased the tension between dependence and independence in the context of disability, which also influenced the intersection of their motherhood and disability identities and their wellbeing. Practitioners should provide emotional support to mothers with disabilities and help them embrace the positive aspects of each identity and strike a balance between them.

摘要

背景

尽管母亲身份在女性身份形成过程中发挥着重要作用,但大多数研究都集中在非残疾女性向母亲身份转变过程中的身份转变过程;对于成为母亲的残疾女性这一过程的了解较少。

目的

本研究旨在从母亲身份与残疾身份的交叉视角以及残疾研究方法出发,理解和描述以色列终身身体残疾女性在其母亲身份之旅中的主观体验。

方法

对20位居住在社区且抚养子女的有明显终身身体残疾的以色列母亲进行了半结构化访谈。

结果

访谈中出现了三个主题:(1)成为母亲的决定:首次应对残疾身份;(2)头三年:依赖他人限制了她们的母亲身份;(3)三岁以后:平衡母亲身份和残疾身份。

结论

向母亲身份的转变导致了残疾女性的身份转变。成为母亲增加了残疾背景下依赖与独立之间的紧张关系,这也影响了她们母亲身份与残疾身份的交叉以及她们的幸福感。从业者应向残疾母亲提供情感支持,帮助她们接受每个身份的积极方面并在两者之间取得平衡。

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本文引用的文献

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"I'm a good mother; I play with her; I love her": The motherhood experience of women with intellectual disabilities from empowering and intersectional approaches.“我是个好母亲;我和她一起玩耍;我爱她”:从赋权和交叉性视角看智障女性的母亲经历
Disabil Health J. 2023 Oct;16(4):101504. doi: 10.1016/j.dhjo.2023.101504. Epub 2023 Jun 29.
2
Psychometric properties of the Disability Identity Development Scale: Confirmatory factor and bifactor analyses.残疾身份认同发展量表的心理测量特性:验证性因素分析和双因素分析
Rehabil Psychol. 2022 May;67(2):120-127. doi: 10.1037/rep0000445. Epub 2022 Apr 4.
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The devolution of eugenic practices: Sexual and reproductive health and oppression of people with intellectual disability.优生实践的演变:性与生殖健康和智力残疾人士的压迫。
Soc Sci Med. 2022 Apr;298:114877. doi: 10.1016/j.socscimed.2022.114877. Epub 2022 Mar 3.
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Factors Affecting the Perception of Disability: A Developmental Perspective.影响残疾认知的因素:发展视角
Front Psychol. 2021 Jun 21;12:702166. doi: 10.3389/fpsyg.2021.702166. eCollection 2021.
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Maternity care experiences of women with physical disabilities: A systematic review.身体残疾女性的孕产护理体验:系统评价。
Midwifery. 2021 May;96:102938. doi: 10.1016/j.midw.2021.102938. Epub 2021 Feb 10.
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Stigma of persons with disabilities in South Africa: Uncovering pathways from discrimination to depression and low self-esteem.南非残疾人士的污名化:从歧视到抑郁和低自尊的途径揭示。
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How I See and Feel About Myself: Domain-Specific Self-Concept and Self-Esteem in Autistic Adults.我对自己的看法和感受:自闭症成年人的特定领域自我概念与自尊
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