Koch R, Yusin M, Fishler K
J Inherit Metab Dis. 1985;8(4):209-11. doi: 10.1007/BF01805437.
The study shows that most individuals between 16 and 25 years of age with PKU appear to function in a productive manner in society. Although they have not become professional men and women, they can acquire jobs of a skilled or semiskilled nature and perform them satisfactorily. The majority seemed content with their jobs and happy with the way their lives were progressing, although only 23% were financially independent. Of the patients interviewed, the majority had made friendships and appeared to keep them without much trouble. The majority of the patients would not tell their friends that they had PKU. The reason for this was that they felt uncomfortable acknowledging that they had this disorder.
该研究表明,大多数16至25岁的苯丙酮尿症患者似乎能在社会中发挥积极作用。尽管他们尚未成为专业人士,但他们能够获得技术或半技术性质的工作并出色完成。大多数人似乎对自己的工作感到满意,对生活的进展也很开心,尽管只有23%的人在经济上独立。在接受采访的患者中,大多数人都交了朋友,而且似乎维持友谊没有太大困难。大多数患者不会告诉朋友自己患有苯丙酮尿症。原因是他们觉得承认自己患有这种疾病会让他们感到不舒服。