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“打破新闻”-自闭症谱系障碍后诊断组干预父母为 6-18 岁儿童。

"Breaking the news"-post-autism spectrum disorder diagnosis group intervention for parents to 6-18-year-old children.

机构信息

Beit Berl College, Israel.

Marot Autism Center, Tel Aviv Sourasky Medical Center, Child Development Institute, Dana-Dwek Children's Hospital, Israel.

出版信息

Clin Child Psychol Psychiatry. 2024 Oct;29(4):1417-1431. doi: 10.1177/13591045241263365. Epub 2024 Jun 18.

DOI:10.1177/13591045241263365
PMID:39396154
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11475628/
Abstract

This study evaluated the effectiveness of a 3-session group intervention for parents who had received a diagnosis of autism for their child within the past month. The intervention group ( = 41) was compared to Treatment-as-Usual ( = 40): one meeting with a social worker after the diagnosis feedback meeting. Parental stress was evaluated in both groups within a week and then a month after the diagnosis. The findings indicate an increase in the experienced parental stress for the comparison group on all six indices, while in the intervention group there was an increase only on two indices. That is to say, the intervention reduced stress that occurred in the first month after the diagnosis. Further analyses revealed that parent satisfaction with the group intervention was the single most important variable in predicting stress reduction. We argue that parent support groups immediately after their child's diagnosis are effective and important, and probably superior to a single post-diagnosis meeting.

摘要

本研究评估了一项为期 3 节的小组干预措施对在过去一个月内为其孩子接受自闭症诊断的父母的有效性。干预组(= 41)与常规治疗(= 40)进行了比较:在诊断反馈会议后与社会工作者进行一次会面。在诊断后一周和一个月内,在两个组中评估了父母的压力。研究结果表明,在比较组的所有六个指标上,父母的压力都有所增加,而在干预组中,只有两个指标上的压力有所增加。也就是说,干预措施减轻了诊断后第一个月的压力。进一步的分析表明,父母对小组干预的满意度是预测压力减轻的唯一最重要的变量。我们认为,在孩子确诊后立即为父母提供支持小组是有效的,也是重要的,而且可能优于单次的诊断后会议。

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本文引用的文献

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REACH-ASD: a UK randomised controlled trial of a new post-diagnostic psycho-education and acceptance and commitment therapy programme against treatment-as-usual for improving the mental health and adjustment of caregivers of children recently diagnosed with autism spectrum disorder.REACH-ASD:一项英国的随机对照试验,针对新的诊断后心理教育和接受与承诺疗法方案与常规治疗进行比较,以改善最近被诊断为自闭症谱系障碍儿童的照顾者的心理健康和适应能力。
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Educational placement of students with autism spectrum disorder and its relation to socioeconomic status, intelligence, and diagnosis.自闭症谱系障碍学生的教育安置及其与社会经济地位、智力和诊断的关系。
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Parents' Experiences of Affiliate Stigma when Caring for a Child with Autism Spectrum Disorder (ASD): A Meta-Synthesis of Qualitative Studies.父母照顾自闭症谱系障碍(ASD)儿童时的附属耻辱感体验:定性研究的元综合。
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The Caregiver Health Effects of Caring for Young Children with Developmental Disabilities: A Meta-analysis.照顾发展障碍幼儿的照料者健康影响:一项荟萃分析。
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Coming to understand the child has autism: A process illustrating parents' evolving readiness for engaging in care.逐渐了解孩子患有自闭症:一个说明父母为参与照护而不断准备的过程。
Autism. 2020 Feb;24(2):470-483. doi: 10.1177/1362361319874647. Epub 2019 Sep 11.
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