比较神经发育障碍儿童的父母压力：以威廉姆斯综合征、唐氏综合征和自闭症谱系障碍为例。
Comparing parental stress of children with neurodevelopmental disorders: The case of Williams syndrome, Down syndrome and autism spectrum disorders.
机构信息
Department of Psychology, Kingston University London, Kingston upon Thames, UK.
School of Education, University of Roehampton, London, UK.
出版信息
J Appl Res Intellect Disabil. 2019 Sep;32(5):1047-1057. doi: 10.1111/jar.12594. Epub 2019 Apr 5.
BACKGROUND
Although parental stress is higher for children with neurodevelopmental disorders (NDs), it is unclear how this stress compares to more common NDs. The current study compared stress in parents of children with Williams syndrome (WS), Down syndrome (DS) and autism spectrum disorders (ASD). The impact of individual and contextual factors was also explored.
METHOD
Parents of children with WS (n = 107), DS (n = 79) and ASD (n = 79) completed a background questionnaire, a parental stress questionnaire and a satisfaction with life questionnaire.
RESULTS
Although all groups displayed similar levels of parental stress, the factors that influenced this stress differed between the groups. There were also differences for life satisfaction and relationships between parental stress and individual and contextual factors.
CONCLUSIONS
Although parents of children with NDs are not at an increased risk of parental stress, the results suggest that interventions should be syndrome-specific.
背景
尽管有神经发育障碍（NDs）的儿童的父母压力更高，但尚不清楚这种压力与更常见的 NDs 相比如何。本研究比较了患有威廉姆斯综合征（WS）、唐氏综合征（DS）和自闭症谱系障碍（ASD）的儿童的父母的压力。还探讨了个体和环境因素的影响。
方法
患有 WS（n=107）、DS（n=79）和 ASD（n=79）的儿童的父母完成了背景问卷、父母压力问卷和生活满意度问卷。
结果
尽管所有组的父母压力水平相似，但影响这种压力的因素在组间有所不同。生活满意度也存在差异，以及父母压力与个体和环境因素之间的关系。
结论
尽管 NDs 儿童的父母没有面临更高的父母压力风险，但结果表明干预措施应该针对特定的综合征。
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