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新斯科舍省关于已故器官捐赠的推定同意:家庭成员在重症监护病房环境中的观点和经历。

Nova Scotia's Deemed Consent for Deceased Organ Donation: Family Member Perspectives and Experiences in the ICU Setting.

作者信息

Sarti Aimee J, Sutherland Stephanie, Weiss Matthew J, Landry Alain, Hemming Heather, Dirk Jade, Lotherington Ken, Beed Stephen

机构信息

Department of Critical Care, Ottawa Hospital, Ottawa, ON, Canada.

Ottawa Hospital Research Institute, Ottawa, ON, Canada.

出版信息

Transplant Direct. 2024 Oct 10;10(11):e1713. doi: 10.1097/TXD.0000000000001713. eCollection 2024 Nov.

DOI:10.1097/TXD.0000000000001713
PMID:39399063
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11469852/
Abstract

BACKGROUND

The purpose of this study was to explore the experience of family members of potential organ donors in the intensive care unit following the change to deemed consent legislation in Nova Scotia.

METHODS

This was a qualitative study with semistructured, in-depth interviews with 17 family members who were asked to make an organ donation decision on behalf of patients admitted to the intensive care unit in Nova Scotia. We analyzed themes using a descriptive approach. Participants were recruited from the organ donation organization in Nova Scotia, Canada.

RESULTS

Participant awareness and knowledge of the Human Organ and Tissue Donation Act legislation varied from individuals having no awareness and knowledge of the bill to those who had awareness and optimism that the legislation would be beneficial for increasing organ donation rates in the province. Other themes emerging from the interviews included (1) COVID context, (2) quality of healthcare professional care, (3) family support, and (4) barriers to donation (waiting, consent questionnaire, and patient transfers).

CONCLUSIONS

The Human Organ and Tissue Donation Act legislation included enhanced support, which was viewed positively by family members. There is a need for continued evaluation as most participants felt it was too early to see the tangible impacts of the newly implemented legislation.

摘要

背景

本研究旨在探讨新斯科舍省实施推定同意立法后,重症监护病房潜在器官捐献者家属的经历。

方法

这是一项定性研究,对17名家属进行了半结构化的深入访谈,这些家属被要求代表入住新斯科舍省重症监护病房的患者做出器官捐献决定。我们采用描述性方法分析主题。参与者从加拿大新斯科舍省的器官捐献组织招募。

结果

参与者对《人体器官和组织捐献法》的认识和了解程度各不相同,从对该法案毫无认识的人到那些意识到并乐观地认为该立法将有助于提高该省器官捐献率的人。访谈中出现的其他主题包括:(1)新冠疫情背景;(2)医疗专业护理质量;(3)家庭支持;(4)捐献障碍(等待、同意调查问卷和患者转院)。

结论

《人体器官和组织捐献法》立法提供了更多支持,家属对此持积极看法。由于大多数参与者认为现在评估新实施立法的实际影响还为时过早,因此有必要继续进行评估。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/29f0/11469852/91f59516360e/txd-10-e1713-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/29f0/11469852/91f59516360e/txd-10-e1713-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/29f0/11469852/91f59516360e/txd-10-e1713-g001.jpg

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本文引用的文献

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Can J Anaesth. 2024 Mar;71(3):400-407. doi: 10.1007/s12630-023-02646-5. Epub 2023 Nov 20.
2
Organ and Tissue Donation Consent Model and Intent to Donate Registries: Recommendations From an International Consensus Forum.器官和组织捐赠同意模型及捐赠意愿登记处:国际共识论坛的建议
Transplant Direct. 2023 Apr 28;9(5):e1416. doi: 10.1097/TXD.0000000000001416. eCollection 2023 May.
3
Death determination by neurologic criteria-what do families understand?
通过神经学标准判断死亡——家属的理解是什么?
Can J Anaesth. 2023 Apr;70(4):637-650. doi: 10.1007/s12630-023-02416-3. Epub 2023 May 2.
4
Analyzing online public commentary responding to the announcement of deemed consent organ donation legislation in the Canadian province of Nova Scotia.分析加拿大新斯科舍省宣布推定同意器官捐赠立法后,公众在网上发表的评论。
PLoS One. 2022 Dec 15;17(12):e0278983. doi: 10.1371/journal.pone.0278983. eCollection 2022.
5
The experiences of family members of deceased organ donors and suggestions to improve the donation process: a qualitative study.器官捐献者逝世后其家属的经历和对改善捐献流程的建议:一项定性研究。
CMAJ. 2022 Aug 8;194(30):E1054-E1061. doi: 10.1503/cmaj.220508.
6
Deemed consent for deceased organ donation.推定同意尸体器官捐赠。
CMAJ. 2021 Jul 5;193(26):E1008-E1009. doi: 10.1503/cmaj.210621.
7
Deemed consent for organ donation: a comparison of the English and Scottish approaches.器官捐赠的推定同意:英格兰与苏格兰方法之比较。
J Law Biosci. 2021 Mar 4;8(1):lsab003. doi: 10.1093/jlb/lsab003. eCollection 2021 Jan-Jun.
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A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program.一项评估新斯科舍省已故器官捐赠立法改革影响的研究计划:LEADDR计划。
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