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从早期行为干预到入学:对家长关于自闭症服务质量在幼儿园过渡阶段看法的系统评估。

From Early Behavioral Intervention to School: A Systematic Evaluation of Parents' Perspectives on the Quality of the Autism Services During the Transition to Kindergarten.

作者信息

Rivard Mélina, Chatenoud Céline, Caya Chiu Chun-Yu, Aldersey Heather, Coulombe Patrick, Morin Marjorie, Mello Catherine, Magnan Charlotte

机构信息

Université du Québec à Montréal, Canada, 100 Sherbrooke E Street, Montréal, H2X 1C3, Canada.

Université du Québec à Montréal, State College, C.P. 8888 succursale Centre-ville, Montréal, H3C 3P8, Canada.

出版信息

J Autism Dev Disord. 2024 Oct 15. doi: 10.1007/s10803-024-06594-x.

Abstract

Research emphasizes the importance of seamless transitions from Early Behavioral Intervention (EBI) to school-based services, but formal support during this critical period remains limited, leading to decreased parental satisfaction with autism services. This study aimed to systematically document parents' perception of the quality of services received during the transition from EBI to kindergarten, along with the predictors of this perception. The study adopted a prospective longitudinal design and relied on a validated evaluation framework, the Evaluation of the Trajectory in Autism for Parents (ETAP). ETAP allows to investigate five critical determinants (accessibility, continuity, validity, flexibility, empathy) of service quality, as rated by parents (N = 138 families), which were evaluated at three critical periods of the transition: end of EBI, beginning and end of first year of school. Quality ratings indicated generally positive perceptions but showed small to medium effect size decreases over time; validity had the largest decrease. Predictors of quality ratings and changes in ratings differed by phase of the transition and included child characteristics (gender, age, disabilities, challenging behavior), parent characteristics (maternal origin, fluency in the official language of the province, education level), and family characteristics (number of children). This study's comprehensive analysis of service quality determinants and possible risk and protective factors provides insights into improving support for families navigating the transition to school.Keywords: Autism, Early behavioral intervention, School transition, Parental perception, Service quality, Evaluation framework.

摘要

研究强调了从早期行为干预(EBI)无缝过渡到基于学校的服务的重要性,但在这一关键时期的正式支持仍然有限,导致家长对自闭症服务的满意度下降。本研究旨在系统记录家长对从EBI过渡到幼儿园期间所接受服务质量的看法,以及这种看法的预测因素。该研究采用了前瞻性纵向设计,并依赖于一个经过验证的评估框架——《家长自闭症轨迹评估》(ETAP)。ETAP允许调查服务质量的五个关键决定因素(可及性、连续性、有效性、灵活性、同理心),由家长(N = 138个家庭)进行评分,这些因素在过渡的三个关键时期进行评估:EBI结束时、入学第一年开始时和结束时。质量评级总体上表明看法积极,但随着时间的推移显示出小到中等程度的效应量下降;有效性下降幅度最大。质量评级及其变化的预测因素因过渡阶段而异,包括儿童特征(性别、年龄、残疾、挑战性行为)、家长特征(母亲籍贯、该省官方语言的流利程度、教育水平)和家庭特征(子女数量)。本研究对服务质量决定因素以及可能的风险和保护因素的全面分析,为改善对正在经历向学校过渡的家庭的支持提供了见解。关键词:自闭症;早期行为干预;学校过渡;家长看法;服务质量;评估框架

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