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残疾人的兄弟姐妹:实证文献的系统综合综述

Siblings of Persons with Disabilities: A Systematic Integrative Review of the Empirical Literature.

作者信息

Levante Annalisa, Martis Chiara, Del Prete Cristina Maria, Martino Paola, Primiceri Patrizia, Lecciso Flavia

机构信息

Department of Human and Social Sciences, University of Salento, Via di Valesio, 73100, Lecce, Italy.

Lab of Applied Psychology, Department of Human and Social Sciences, University of Salento, Via di Valesio, 73100, Lecce, Italy.

出版信息

Clin Child Fam Psychol Rev. 2025 Mar;28(1):209-253. doi: 10.1007/s10567-024-00502-6. Epub 2024 Oct 16.

Abstract

The systematic review aimed to systematize the empirical literature on the psychological impact of disability on the siblings of persons with disabilities, to inform research and provide clinical recommendations. Two research questions addressed the review: (1) What are the main psychological constructs investigated in siblings of persons with disability? (2) What is the main role of each psychological construct in siblings of persons with disability experience? The electronic search was conducted in 7 databases and the PRISMA diagram was used. The inclusion criteria were: Papers published in English and in peer-reviewed journals; papers published between January 2014 and June 2024; qualitative, quantitative, and mixed studies; and papers on the psychological impact of disabilities and/or chronic illnesses on the experience of siblings of persons with disabilities. The standardized Mixed Method Appraisal Tool protocol was used to appraise the methodological quality of the studies. To summarize the findings, a narrative approach was adopted. A total of 60 studies have been reviewed. According to the methodological quality appraisal of studies, most of them reported a high (n = 45) and medium (n = 15) quality. They involved 10,146 participants. Findings revealed that sibling relationships, sibling-focused parentification, and emotional/behavioral adjustment are the main psychological constructs investigated by existing literature. Few studies focused on siblings' well-being. Studies exploring more than a psychological construct were included as a hybrid. Only one study examined the siblings' psychological experience during the COVID-19 pandemic. The quality of the sibling relationship ranged from good to poor; the caregiver is the main role played by siblings of persons with disabilities; anxiety, depression, and aggressive behaviors are the main emotional/behavioral symptoms revealed. Most studies (n = 39) recruited participants with brothers or sisters with mental disorders. The findings of this systematic review may play a role in the clinical field, as they might help to design gender- and age-specific intervention programs.

摘要

这项系统评价旨在对关于残疾对残疾人兄弟姐妹心理影响的实证文献进行系统化整理,为研究提供信息并给出临床建议。该评价涉及两个研究问题:(1)在残疾人士的兄弟姐妹中,主要研究的心理构念有哪些?(2)每个心理构念在残疾人士兄弟姐妹的经历中主要起什么作用?通过在7个数据库中进行电子检索,并使用PRISMA流程图。纳入标准为:以英文发表且在同行评审期刊上发表的论文;2014年1月至2024年6月期间发表的论文;定性、定量和混合研究;以及关于残疾和/或慢性病对残疾人士兄弟姐妹经历的心理影响的论文。使用标准化的混合方法评估工具协议来评估研究的方法学质量。为总结研究结果,采用了叙述性方法。总共审查了60项研究。根据研究的方法学质量评估,其中大多数报告质量较高(n = 45)和中等(n = 15)。这些研究涉及10146名参与者。研究结果表明,兄弟姐妹关系、以兄弟姐妹为中心的家长化以及情绪/行为调整是现有文献中主要研究的心理构念。很少有研究关注兄弟姐妹的幸福感。探索不止一个心理构念的研究被归为混合型。只有一项研究考察了新冠疫情期间兄弟姐妹的心理经历。兄弟姐妹关系的质量从良好到较差不等;照顾者是残疾人士兄弟姐妹所扮演的主要角色;焦虑、抑郁和攻击性行为是所揭示的主要情绪/行为症状。大多数研究(n = 39)招募了有患有精神障碍的兄弟姐妹的参与者。这项系统评价的结果可能在临床领域发挥作用,因为它们可能有助于设计针对性别和年龄的干预项目。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d44f/11885339/6d6a7acdfea7/10567_2024_502_Fig1_HTML.jpg

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