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照顾兄弟姐妹的青少年年轻照料者。

Adolescent Young Carers Who Provide Care to Siblings.

作者信息

Brolin Rosita, Hanson Elizabeth, Magnusson Lennart, Lewis Feylyn, Parkhouse Tom, Hlebec Valentina, Santini Sara, Hoefman Renske, Leu Agnes, Becker Saul

机构信息

Department Health and Caring Sciences, Linnaeus University, SE-39182 Kalmar, Sweden.

The Swedish Family Care Competence Centre, Region Kalmar, Strömgatan 13, SE-39232 Kalmar, Sweden.

出版信息

Healthcare (Basel). 2024 Jan 25;12(3):316. doi: 10.3390/healthcare12030316.

Abstract

A child's disability, long-term illness, or mental ill-health is known to affect siblings' health, social life, school engagement, and quality of life. This article addresses a research gap by its focus on young sibling carers and the impact of providing care to a sibling. A cross-national survey study was conducted in 2018-2019 (Italy, the Netherlands, Slovenia, Sweden, Switzerland, the UK) to examine the incidence of adolescent sibling carers, the extent of care they provide, and their self-reported health, well-being, and school situation. The survey was completed by 7146 adolescents, aged 15-17, and 1444 of them provided care to family members with health-related conditions. Out of these, 286 were identified as Sibling Carers and 668 as Parent Carers, while 181 had both sibling(s) and parent(s) with health-related conditions, and thus were identified as Sibling-Parent Carers. Sibling Carers and Sibling-Parent Carers carried out higher levels of caring activities compared to Parent Carers. They reported both positive aspects of caring, such as increased maturity, and negative aspects, such as mental ill-health, impact on schooling and a lack of support. To reduce the negative aspects of a sibling carer role, it is important to recognise them and to implement early preventive measures and formal support.

摘要

众所周知,孩子的残疾、长期疾病或心理健康问题会影响其兄弟姐妹的健康、社交生活、学业参与度和生活质量。本文聚焦于年幼的兄弟姐妹照顾者以及照顾兄弟姐妹所产生的影响,从而填补了一项研究空白。2018年至2019年在意大利、荷兰、斯洛文尼亚、瑞典、瑞士、英国开展了一项跨国调查研究,以调查青少年兄弟姐妹照顾者的发生率、他们提供照顾的程度以及他们自我报告的健康状况、幸福感和学业情况。共有7146名15至17岁的青少年完成了调查,其中1444人照顾患有健康相关疾病的家庭成员。在这些人中,286人被确定为兄弟姐妹照顾者,668人被确定为父母照顾者,另有181人的兄弟姐妹和父母都患有健康相关疾病,因此被确定为兄弟姐妹 - 父母照顾者。与父母照顾者相比,兄弟姐妹照顾者和兄弟姐妹 - 父母照顾者开展的照顾活动水平更高。他们既报告了照顾的积极方面,如变得更加成熟,也报告了消极方面,如心理健康问题、对学业的影响以及缺乏支持。为了减少兄弟姐妹照顾者角色的消极方面,认识到这些问题并实施早期预防措施和正式支持很重要。

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