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医疗保健专业人员对患有转移性癌症的华裔、韩裔和越南裔美国人支持性护理需求的看法。

Healthcare Professionals' Views of Supportive Care Needs for Chinese, Korean, and Vietnamese Americans with Metastatic Cancer.

作者信息

Kim Jacqueline H J, Ahmed Kauser, Ahn Sang-Hoon, Nguyen Becky, Phung Peter, Pan Shirley, Lu Qian, Kagawa Singer Marjorie, Stanton Annette L

机构信息

Department of Medicine, University of California, Irvine.

Chao Family Comprehensive Cancer Center, University of California, Irvine.

出版信息

Asian Am J Psychol. 2024 Sep;15(3):233-245. doi: 10.1037/aap0000329.

Abstract

The supportive care needs of people with metastatic cancer, particularly Asian Americans, are understudied. Distinct psychosocial support needs may exist across ethnocultural groups with Confucian-heritage values and norms. Cultural factors may shape how adults approach their oncologic care. This qualitative study represents the perspectives of 15 experienced healthcare professionals about the supportive care needs of Chinese-, Korean-, and Vietnamese-heritage (CKV) adults with metastatic solid cancers. Reflexive thematic analysis was conducted with transcripts from three semi-structured focus groups and five parallel-format individual interviews. Inductive coding and iterative theme development resulted in four themes describing the types of needs (basic, care-related, mental health, relational trust) that should be met for CKV patients with metastatic cancer, which may fall through the gaps when the healthcare system and patient's differing cultural contexts collide. In conclusion, greater involvement of psychosocial care specialists with cultural expertise is essential to promote patients' and families' well-being, prevent care disparities, and better support the healthcare team. Systemic changes that increase workforce diversity, reduce language and insurance barriers, and allow healthcare professionals to build relational trust with patients, are needed to improve quality of life for CKV patients with metastatic cancer.

摘要

转移性癌症患者,尤其是亚裔美国人的支持性护理需求尚未得到充分研究。具有儒家传统价值观和规范的不同种族文化群体可能存在不同的心理社会支持需求。文化因素可能会影响成年人对待肿瘤护理的方式。这项定性研究代表了15位经验丰富的医疗保健专业人员对患有转移性实体癌的华裔、韩裔和越南裔(CKV)成年人的支持性护理需求的看法。对来自三个半结构化焦点小组和五次平行格式个人访谈的记录进行了反思性主题分析。归纳编码和迭代主题发展产生了四个主题,描述了转移性癌症CKV患者应满足的需求类型(基本需求、护理相关需求、心理健康需求、关系信任需求),当医疗系统和患者不同的文化背景发生冲突时,这些需求可能会被忽视。总之,让具有文化专业知识的心理社会护理专家更多地参与进来对于促进患者及其家庭的福祉、防止护理差异以及更好地支持医疗团队至关重要。需要进行系统性变革,以增加劳动力多样性、减少语言和保险障碍,并使医疗保健专业人员能够与患者建立关系信任,从而提高转移性癌症CKV患者的生活质量。

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Cancer treatment and survivorship statistics, 2022.2022 年癌症治疗和生存统计。
CA Cancer J Clin. 2022 Sep;72(5):409-436. doi: 10.3322/caac.21731. Epub 2022 Jun 23.
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Anti-Asian American Racism: A Wake-Up Call for Population-Based Cancer Research.反亚裔美国人种族主义:基于人群的癌症研究的警钟。
Cancer Epidemiol Biomarkers Prev. 2021 Aug;30(8):1455-1458. doi: 10.1158/1055-9965.EPI-21-0445. Epub 2021 Jul 7.
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Time to Study Metastatic-Cancer Survivorship.是时候研究转移性癌症幸存者了。
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