Merson Laura, Yeabah Trokon Omarley, Strudwick Samantha, Fayiah Tamba, Lee Jennifer H, Feika Musa Martin, Buck Gemma, Oneill Kwame, Kennon Kalynn, Cherif Mahamoud Sama
ISARIC, Pandemic Sciences Institute, University of Oxford, Oxford, England, UK.
National Public Health Institute Liberia, Monrovia, Liberia.
Wellcome Open Res. 2024 Sep 26;9:548. doi: 10.12688/wellcomeopenres.22483.1. eCollection 2024.
The Ebola Data Platform (EDP) was developed to strengthen knowledge and capacity across health, research, and humanitarian communities to reduce the impact of Ebola through responsible data use. This collaborative initiative was established by West African governments, NGOs, academic organisations, and intra-governmental health organisations directly involved in the 2013-2016 West African Ebola outbreak. The platform was established to provide a centralised, standardised dataset of individual patient data collected during the outbreak for the purpose of research to improve Ebola treatment and control, and includes over 13,600 patient records of individuals infected and treated from 22 different Ebola treatment centres across Guinea, Sierra Leone, Liberia, and Nigeria. Patient data are available from treatment centre triage and admission, inpatient clinical observations, and outcomes, with outpatient follow-up available for some datasets. Data include signs and symptoms, pre-existing comorbidities, vital signs, laboratory testing, treatments, complications, dates of admission and discharge, mortality, viral strains, and other data. This publication describes characteristics of the EDP dataset, its architecture, methods for data access and tools for utilising the dataset.
埃博拉数据平台（EDP）的开发旨在增强卫生、研究和人道主义社区的知识与能力，通过负责任地使用数据来减少埃博拉的影响。这一合作倡议由直接参与2013 - 2016年西非埃博拉疫情的西非各国政府、非政府组织、学术机构和政府间卫生组织共同发起。该平台的建立是为了提供一个集中的、标准化的疫情期间个体患者数据数据集，用于开展研究以改善埃博拉的治疗与防控，其中包含来自几内亚、塞拉利昂、利比里亚和尼日利亚22个不同埃博拉治疗中心的13,600多名感染并接受治疗患者的记录。患者数据涵盖治疗中心的分诊与入院、住院临床观察及治疗结果，部分数据集还有门诊随访信息。数据包括体征和症状、既往合并症、生命体征、实验室检测、治疗、并发症、入院和出院日期、死亡率、病毒株及其他数据。本出版物描述了EDP数据集的特征、其架构、数据访问方法以及利用该数据集的工具。
