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共享即关怀?患者与临床医生对数字化背景下个人医疗数据处理的看法:一项探索性研究。

Sharing for Caring? A Patients' and Clinicians' View on Handling Personal Medical Data in the Context of Digitization: An Exploratory Study.

作者信息

Frank Kevin, Mengesdorf Thorsten, Radić Marija, Herrmann Philipp, Appenzeller Arno, Mucha Henrik, Orak Berna, Spiecker Gen Döhmann Indra, Rüping Stefan, Burkhardt Harald, Köhm Michaela, Dauth Stephanie

机构信息

Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, 60596 Frankfurt, Germany.

Fraunhofer Cluster of Excellence Immune-Mediated Diseases CIMD, 60596 Frankfurt, Germany.

出版信息

Healthcare (Basel). 2024 Oct 16;12(20):2053. doi: 10.3390/healthcare12202053.

DOI:10.3390/healthcare12202053
PMID:39451469
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11507340/
Abstract

BACKGROUND

The healthcare sector is currently undergoing a significant transformation, driven by an increased utilization of data. In this evolving landscape, surveys are of pivotal importance to the comprehension of patient needs and preferences. Moreover, the digital affinity of patients and physicians within the healthcare system is reforming the manner in which healthcare services are accessed and delivered. The utilization and donation of data are influencing the future of medical research and treatment, while artificial intelligence (AI) is empowering patients and physicians with knowledge and improving healthcare delivery.

METHODS

In order to evaluate the opinions of patients and physicians regarding the management of personal health data and the functionality of upcoming data management devices in the context of healthcare digitization, we conducted an exploratory study and designed a survey. The survey focused on a number of key areas, including demographics, experience with digitization, data handling, the identification of needs for upcoming digitization, and AI in healthcare.

RESULTS

A total of 40 patients and 15 physicians participated in the survey. The results indicate that data security, timesaving/administrative support, and digital communication are aspects that patients associate with patient-friendly digitization. Based on the responses provided by physicians, it might be concluded that future digital platforms should prioritize usability, time efficacy, data security, and interoperability.

CONCLUSIONS

In terms of expectations for future digital platforms, there is a notable overlap between the needs expressed by patients and those identified by physicians, particularly in relation to usability, time management, data security, and digital communication. This suggests that the requirements of different stakeholders can be combined in a future system, although individual issues may still require attention.

摘要

背景

在数据利用增加的推动下,医疗保健行业目前正在经历重大变革。在这一不断演变的格局中,调查对于理解患者需求和偏好至关重要。此外,医疗保健系统中患者和医生的数字亲和力正在改变获取和提供医疗服务的方式。数据的利用和捐赠正在影响医学研究和治疗的未来,而人工智能(AI)正在为患者和医生提供知识并改善医疗服务的提供。

方法

为了评估患者和医生对个人健康数据管理以及即将推出的数据管理设备在医疗数字化背景下的功能的看法,我们进行了一项探索性研究并设计了一项调查。该调查聚焦于多个关键领域,包括人口统计学、数字化体验、数据处理、对即将到来的数字化的需求识别以及医疗保健中的人工智能。

结果

共有40名患者和15名医生参与了该调查。结果表明,数据安全、节省时间/行政支持以及数字通信是患者与患者友好型数字化相关联的方面。根据医生提供的回复,可以得出结论,未来的数字平台应优先考虑可用性、时间效率、数据安全和互操作性。

结论

在对未来数字平台的期望方面,患者表达的需求与医生确定的需求之间存在显著重叠,特别是在可用性、时间管理、数据安全和数字通信方面。这表明不同利益相关者的要求可以在未来系统中结合起来,尽管个别问题可能仍需关注。

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本文引用的文献

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Understanding inherent influencing factors to digital health adoption in general practices through a mixed-methods analysis.通过混合方法分析了解影响全科医疗中数字健康采用的内在因素。
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Interoperability of heterogeneous health information systems: a systematic literature review.异构健康信息系统的互操作性:系统文献回顾。
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