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本文引用的文献

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Unpaid carers: a silent workforce.无偿护理人员:一支沉默的劳动力大军。
Lancet Public Health. 2024 Jan;9(1):e1. doi: 10.1016/S2468-2667(23)00311-0.
2
Learning lessons from dementia workforce education to develop general hospital dementia change agents for the future: A constructivist grounded theory study.从痴呆症劳动力教育中吸取教训,为未来培养综合医院痴呆症变革推动者:一项建构主义扎根理论研究。
Dementia (London). 2023 Apr;22(3):646-663. doi: 10.1177/14713012231156004. Epub 2023 Feb 8.
3
Systematic review of dyadic psychoeducational programs for persons with dementia and their family caregivers.系统评价痴呆患者及其家庭照顾者的对偶心理教育计划。
J Clin Nurs. 2023 Aug;32(15-16):4228-4248. doi: 10.1111/jocn.16570. Epub 2022 Nov 2.
4
Patterns of unplanned hospital admissions among people with dementia: from diagnosis to the end of life.痴呆患者非计划性住院模式:从诊断到临终。
Age Ageing. 2022 May 1;51(5). doi: 10.1093/ageing/afac098.
5
Family caregivers for older persons with dementia offer recommendations to current caregivers: a qualitative investigation.老年痴呆症患者的家庭护理人员为当前护理人员提供建议:一项定性研究。
J Res Nurs. 2021 Dec;26(8):796-806. doi: 10.1177/17449871211041682. Epub 2021 Sep 20.
6
Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers.成为痴呆症患者的家庭照顾者:关于家庭照顾者需求的文献综述
SAGE Open Nurs. 2021 Jul 22;7:23779608211029073. doi: 10.1177/23779608211029073. eCollection 2021 Jan-Dec.
7
Caring for caregivers/care partners of persons with dementia.关爱痴呆症患者的照料者/护理伙伴。
Int Psychogeriatr. 2021 Apr;33(4):307-310. doi: 10.1017/S1041610221000557.
8
Evolution of lived experience of dementia caregivers after a psycho-educational group: an interpretative phenomenological analysis.痴呆症照顾者经历心理教育团体后的生活体验演变:解释性现象学分析。
Scand J Caring Sci. 2021 Dec;35(4):1134-1142. doi: 10.1111/scs.12929. Epub 2020 Nov 8.
9
Impact of dementia on informal care: a systematic review of family caregivers' perceptions.痴呆症对非正式照护的影响:对家庭照护者认知的系统评价
BMJ Support Palliat Care. 2020 Oct 14. doi: 10.1136/bmjspcare-2020-002242.
10
The Trajectory of Caregiver Burden and Risk Factors in Dementia Progression: A Systematic Review.《痴呆症进展中照料者负担及其危险因素的轨迹:系统综述》。
J Alzheimers Dis. 2020;77(3):1107-1115. doi: 10.3233/JAD-200647.

促进家庭护理者痴呆症教育:我们都需要学习。

Facilitating Family Carer Dementia Education: We All Need to Learn.

作者信息

Jack-Waugh Anna, Holland Susan, Macrae Rhoda, Mimnaugh Jane, Tolson Debbie

机构信息

Alzheimer Scotland Centre for Policy and Practice, School of Health & Life Sciences, University of the West of Scotland, Glasgow G72 0LH, UK.

NHS Ayrshire and Arran, Kilmarnock KA2 0BE, UK.

出版信息

Healthcare (Basel). 2024 Oct 21;12(20):2096. doi: 10.3390/healthcare12202096.

DOI:10.3390/healthcare12202096
PMID:39451510
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11507267/
Abstract

BACKGROUND/OBJECTIVES: The importance of family carer dementia education is highlighted in research, practice guidance, and policy. Less attention is paid to how facilitators learn and prepare for their role. This research aimed to explore and describe facilitator learning experiences within a bespoke Scottish Carers' Academy designed around a theory-guided approach called Care Empathia. A healthcare and university partnership ensured integration with services and the fusion of dementia higher education know-how with clinical practice expertise.

METHODS

Nineteen facilitator questionnaires were completed from two Carer Academy hubs; thirteen participated in online focus groups.

RESULTS

The questionnaire findings highlighted the learning gained from being a facilitator, observing expert facilitators in action, and listening to the testimonies of family carers. The framework analysis of the focus group data identified six themes, including safe learning approaches, the art of facilitation, emotional work, team learning, and leadership. These findings highlight the importance of facilitator preparation and the advantages of co-delivery models that combine clinical and practice education expertise.

CONCLUSION

Facilitators need to understand how to walk the talk of theory-guided educational models, be open to reciprocity in learning, and be prepared for the emotional work of delivering trauma-informed practical dementia care education to family carers.

摘要

背景/目的:研究、实践指南和政策都强调了家庭照顾者痴呆症教育的重要性。但对于促进者如何学习并为其角色做好准备的关注较少。本研究旨在探索和描述在围绕一种名为“关怀同理心”的理论指导方法设计的定制苏格兰照顾者学院中促进者的学习经历。医疗保健机构与大学的合作确保了与服务的整合,以及痴呆症高等教育专业知识与临床实践专业知识的融合。

方法

从两个照顾者学院中心收集了19份促进者问卷;13人参加了在线焦点小组。

结果

问卷结果突出了作为促进者所获得的学习、观察专家促进者的实际操作以及聆听家庭照顾者的证词。焦点小组数据的框架分析确定了六个主题,包括安全的学习方法、促进技巧、情感工作、团队学习和领导力。这些发现突出了促进者准备工作的重要性以及结合临床和实践教育专业知识的联合授课模式的优势。

结论

促进者需要了解如何践行理论指导教育模式,乐于在学习中相互交流,并为向家庭照顾者提供创伤知情的实用痴呆症护理教育的情感工作做好准备。