Research Center of Clinical psychology, psychopathology and psychosomatics, Université libre de Bruxelles, Brussels, Belgium.
Neurology Department, Erasmus Hospital, Brussels, Belgium.
Scand J Caring Sci. 2021 Dec;35(4):1134-1142. doi: 10.1111/scs.12929. Epub 2020 Nov 8.
The 'Help and Support for Caregivers and Patients' psycho-education group aims to educate and support dementia caregivers. Fourteen spousal caregivers were interviewed before (T1) and after (T2) psycho-education participation. Intrapersonal processes and the potential evolution of lived experience were explored using longitudinal interpretative phenomenological analysis. Three trajectory groups were identified at T1: proactive help-seekers, passive but hopeful caregivers and ambivalent caregivers. T2 interviews revealed that caregivers experienced growth in their role, benefitted from peer interactions, feelings of guilt were addressed and they were using out-of-home dementia-specific services. Identifying beliefs or attitudes that might prevent caregivers from getting help or support is important. Caregiver well-being remains a public health priority and furthering our knowledge about their complex and changing needs is paramount to provide well-designed and tailored resources.
“照顾者和患者的帮助与支持”心理教育小组旨在为痴呆症照顾者提供教育和支持。在心理教育参与前后（T1 和 T2），对 14 名配偶照顾者进行了访谈。使用纵向解释性现象学分析探讨了人际过程和生活体验的潜在演变。在 T1 时确定了三个轨迹组：积极寻求帮助者、被动但有希望的照顾者和矛盾的照顾者。T2 访谈显示，照顾者在角色中得到了成长，从同伴互动中受益，减轻了内疚感，并开始使用专门针对痴呆症的非家庭服务。确定可能阻止照顾者寻求帮助或支持的信念或态度很重要。照顾者的幸福感仍然是公共卫生的重点，进一步了解他们复杂和不断变化的需求对于提供精心设计和量身定制的资源至关重要。
