Hotez Emily, Phan Jenny M, Truong Dieu M
Los Angeles (UCLA), David Geffen School of Medicine, University of California, Los Angeles, CA, USA.
Center for Autism, Children's National Hospital, Children's National Research Institute, Rockville, MD, USA.
Curr Psychiatry Rep. 2024 Dec;26(12):761-770. doi: 10.1007/s11920-024-01551-y. Epub 2024 Oct 26.
Autistic individuals experience disproportionate stigma across the life course in interpersonal, healthcare, and educational contexts. These experiences contribute to negative health and healthcare outcomes for this population. This paper seeks to describe autistic individuals' experiences of stigma and marginalization; discuss frameworks such as Campinha-Bacote's innovative concept of cultural competemility and its relevance to autistic populations; offer recommendations to healthcare providers based on this framework; and apply theory to practice in a case study.
Autistic individuals increasingly understand autism as an important aspect of their identity. There are, however, few culturally informed healthcare efforts that reflect this understanding. As a result, efforts to address stigma-related health disparities for this population have limited effectiveness. In this manuscript, we highlight opportunities within clinical encounters, medical training, healthcare offices and systems, and research to provide higher quality culturally informed care to autistic populations and address stigma-related health disparities.
自闭症患者在人际、医疗和教育环境中,一生都面临着不成比例的耻辱感。这些经历导致了该人群负面的健康和医疗结果。本文旨在描述自闭症患者的耻辱感和边缘化经历;讨论诸如坎皮尼亚 - 巴科特的文化竞争力创新概念等框架及其与自闭症人群的相关性;基于该框架为医疗服务提供者提供建议;并在一个案例研究中将理论应用于实践。
自闭症患者越来越将自闭症视为其身份的一个重要方面。然而,很少有基于文化的医疗努力能反映这种理解。因此,为解决该人群与耻辱感相关的健康差距所做的努力效果有限。在本手稿中,我们强调在临床诊疗、医学培训、医疗机构和系统以及研究中存在的机会,以便为自闭症人群提供更高质量的基于文化的护理,并解决与耻辱感相关的健康差距。