Rodrigues Kiran, Murphy Matthew, Jack Helen E, Berk Justin
Brown University, Providence, Rhode Island, USA.
Department of Medicine, Alpert Medical School at Brown University, Providence, Rhode Island, USA.
J Correct Health Care. 2024 Dec;30(6):368-373. doi: 10.1089/jchc.24.01.0002. Epub 2024 Oct 28.
The participation of incarcerated individuals in research is necessary to appropriately address the health disparities that affect them and to adapt and implement health services for the carceral setting. Incarceration significantly impacts health, leading to negative outcomes including accelerated aging and increased mortality, with these effects disproportionately impacting communities of color. The U.S. Department of Health and Human Services' Office for Human Research Protections outlines ethical approaches to compensating individuals who participate in research activities, yet lacks specific guidance for payment within carceral settings. Historical abuses in carceral research underscore the persistent need for robust protections for incarcerated research participants. Existing regulations offer some protection but inadequately address ethical payment practices. Substantial variability in payment policies across carceral systems and vague national guidelines pose ethical challenges in ensuring equitable treatment for incarcerated research participants. We outline the ethical concerns related to compensating incarcerated individuals for participating in research and present a framework of approaches to payment. We argue for payment parity between incarcerated and community research participants. More community-engaged research is needed to understand the perspectives of incarcerated individuals on ethical payment.
被监禁者参与研究对于妥善解决影响他们的健康差异以及为监禁环境调整和实施卫生服务而言是必要的。监禁对健康有重大影响,会导致包括加速衰老和死亡率上升在内的负面结果,且这些影响对有色人种社区的冲击尤为严重。美国卫生与公众服务部人类研究保护办公室概述了补偿参与研究活动人员的伦理方法,但缺乏针对监禁环境中支付的具体指导。监禁研究中的历史滥用行为凸显了对被监禁研究参与者进行有力保护的持续需求。现有法规提供了一些保护,但未充分解决伦理支付实践问题。各监禁系统支付政策存在很大差异,国家指导方针也含糊不清,这在确保被监禁研究参与者得到公平对待方面带来了伦理挑战。我们概述了与补偿被监禁者参与研究相关的伦理问题,并提出了一个支付方法框架。我们主张被监禁研究参与者与社区研究参与者在支付方面享有同等权利。需要开展更多社区参与的研究,以了解被监禁者对伦理支付的看法。