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正确信息、正确护理、正确患者、正确时间:社区偏好用于为上呼吸道症状提供自我管理支持工具的信息。

Right Information, Right Care, Right Patient, Right Time: Community Preferences to Inform a Self-Management Support Tool for Upper Respiratory Symptoms.

作者信息

Gutnick Damara, Lutz Carlo, Mani Kyle A, Weldon Christine B, Trosman Julia R, Rapkin Bruce, Jinnett Kimberly, Fleurimont Judes, Kaur Savneet, Jariwala Sunit P

机构信息

Albert Einstein College of Medicine and Montefiore Medical Center, Bronx, New York, United States.

Department of Emergency Medicine, Albert Einstein College of Medicine, Bronx, New York, United States.

出版信息

Appl Clin Inform. 2025 Jan;16(1):145-155. doi: 10.1055/a-2441-6016. Epub 2024 Oct 29.

DOI:10.1055/a-2441-6016
PMID:39472036
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11839252/
Abstract

OBJECTIVES

During and since the coronavirus disease 2019 (COVID-19) pandemic, communities have needed to cope with several conditions that cause similar upper respiratory symptoms but are managed differently. We describe community reactions to a self-management toolkit for patients with upper respiratory symptoms to inform mobile e-health app development. The toolkit is based on the "4R" (Right Information, Right Care, Right Patient, Right Time) care planning and management model.

METHODS

The 4R Cold, Flu, and COVID-19 Information Tool (4R-Toolkit) along with a brief evaluation survey were distributed in three ways: through a Bronx NY Allergy/Asthma clinic, through the Bronx Borough President's Office listserv, and through peer recruitment. The survey assessed respondents' perceptions of the 4R-Toolkit's accessibility, preferences for sharing symptoms with clinicians, social media use, and e-health literacy.

RESULTS

We obtained a diverse sample of 106 Bronx residents, with 83% reporting personal or a social contact with symptoms suggestive of COVID-19. Respondents varied in the information sources they preferred: computer (39%), smartphone (28%), paper (11%), and no preference (22%). Most (67%) reported that social media had at least some impact on their health care decisions. Regardless of media preferences, respondents were positive about the 4R-Toolkit. Out of 106 respondents, 91% believed the 4R-Toolkit would help people self-manage upper respiratory symptoms and 85% found it easy to understand. Respondents strongly endorsed retention of all 4R-Toolkit content domains with 81% indicating that they would be willing to share symptoms with providers using a 4R-Toolkit smartphone app.

CONCLUSION

The 4R-Toolkit can offer patients and community members accurate and up-to-date information on COVID-19, the common cold, and the flu. The user-friendly tool is accessible to diverse individuals, including those with limited e-health literacy. It has potential to support self-management of upper respiratory symptoms and promote patient engagement with providers.

摘要

目的

在2019年冠状病毒病(COVID-19)大流行期间及之后,社区需要应对几种会导致类似上呼吸道症状但管理方式不同的疾病。我们描述了社区对一种针对有上呼吸道症状患者的自我管理工具包的反应,以为移动电子健康应用程序的开发提供信息。该工具包基于“4R”(正确信息、正确护理、正确患者、正确时间)护理计划和管理模型。

方法

“4R感冒、流感和COVID-19信息工具”(4R工具包)以及一份简短的评估调查问卷通过三种方式分发:通过纽约布朗克斯区的一家过敏/哮喘诊所、通过布朗克斯区区长办公室的邮件列表以及通过同伴招募。该调查评估了受访者对4R工具包可及性的看法、与临床医生分享症状的偏好、社交媒体使用情况以及电子健康素养。

结果

我们获得了106名布朗克斯居民的多样化样本,其中83%报告称自己或社交联系人有疑似COVID-19的症状。受访者偏好的信息来源各不相同:电脑(39%)、智能手机(28%)、纸质材料(11%)以及无偏好(22%)。大多数(67%)报告称社交媒体至少对他们的医疗保健决策有一定影响。无论对媒体的偏好如何,受访者对4R工具包持积极态度。在106名受访者中,91%认为4R工具包将有助于人们自我管理上呼吸道症状,85%觉得它易于理解。受访者强烈支持保留4R工具包的所有内容领域,81%表示他们愿意使用4R工具包智能手机应用程序与医疗服务提供者分享症状。

结论

4R工具包可以为患者和社区成员提供有关COVID-19、普通感冒和流感的准确且最新的信息。这个用户友好型工具可供包括电子健康素养有限的人群在内的不同个体使用。它有潜力支持对上呼吸道症状的自我管理,并促进患者与医疗服务提供者的互动。

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