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增强健康:探索促进机构在支持印度阿萨姆邦慢性病患者方面的重要作用。

Empowering health: exploring the vital role of facilitator organisations in supporting chronic disease patients in Assam, India.

作者信息

Bhuyan Hiranmoyee, Singha Seema S

机构信息

Department of Commerce, Dibrugarh University, Dibrugarh, Assam, India.

出版信息

Res Health Serv Reg. 2024 Oct 30;3(1):16. doi: 10.1007/s43999-024-00052-y.


DOI:10.1007/s43999-024-00052-y
PMID:39472352
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11522247/
Abstract

BACKGROUND: The research centers on an underrated type of mediator organization namely facilitator organizations (FO) that work in the health care setting. These organizations are mediators that bridge the gap between patients (healthcare customers) and medical services. The facilitator organizations considered for the study are non-governmental organizations situated in Assam that works in align to chronic diseases, particularly cancer. METHODS: The data collection was done through organizational referrals for the study making it a snowball sampling, progressively incorporating additional contemporary entities. The study's respondents were facilitator organizations (i.e.Non-Government Organizations) actively involved in addressing chronic disease. Data were gathered from these facilitator organizations situated in Assam, India, supporting healthcare customers specifically those with cancer. Key informant interviews and semi-structured questionnaires were used for data collection, the responses were documented using a field diary and the Lovelock service model was used as a reference for the construction of the questionnaire and developing the research framework. RESULTS: The analysis of data shows that facilitator organisations maintain continuity in relationships, which enhances health management and outcomes for customers. The shift in cancer care towards a patient-centred approach and the crucial role of FOs in providing comprehensive and individualized care, addressing diverse patient needs thereby addressing the holistic development of the health care customer is vital. In addition, effective patient-centred communication, incorporating trust, compassion, respect and comprehensive support including mental health therapy, occupational therapy, and rehabilitation plays a crucial role in leading a normal life. ` CONCLUSION: The facilitator organizations dealing with Cancer have to meet a broad range of services outside the core medical service providers for their healthcare customers. These efforts contribute to the overall recovery of both the healthcare customer with cancer and their family.

摘要

背景:该研究聚焦于一种被低估的调解组织类型,即医疗机构中的促进者组织(FO)。这些组织是患者(医疗保健客户)与医疗服务之间的桥梁。本研究中所考虑的促进者组织是位于阿萨姆邦的非政府组织,致力于慢性病,尤其是癌症方面的工作。 方法:通过组织推荐进行数据收集,这使其成为一种滚雪球抽样,逐步纳入更多当代实体。该研究的受访者是积极参与解决慢性病问题的促进者组织(即非政府组织)。数据收集自位于印度阿萨姆邦的这些促进者组织,这些组织为医疗保健客户,特别是癌症患者提供支持。通过关键 informant 访谈和半结构化问卷进行数据收集,使用实地日记记录回答内容,并以 Lovelock 服务模型为参考构建问卷和制定研究框架。 结果:数据分析表明,促进者组织保持关系的连续性,这提高了客户的健康管理水平和健康结果。癌症护理向以患者为中心的方法转变,以及促进者组织在提供全面和个性化护理、满足患者多样化需求从而促进医疗保健客户的整体发展方面的关键作用至关重要。此外,以患者为中心的有效沟通,包括信任、同情、尊重以及包括心理健康治疗、职业治疗和康复在内的全面支持,对于过上正常生活起着至关重要的作用。 结论:处理癌症问题的促进者组织必须为其医疗保健客户提供核心医疗服务提供商之外的广泛服务。这些努力有助于癌症医疗保健客户及其家庭的全面康复。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b082/11522247/71fcd67623d5/43999_2024_52_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b082/11522247/686603e2be78/43999_2024_52_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b082/11522247/71fcd67623d5/43999_2024_52_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b082/11522247/686603e2be78/43999_2024_52_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b082/11522247/71fcd67623d5/43999_2024_52_Fig2_HTML.jpg

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本文引用的文献

[1]
Socio-cultural beliefs and perceptions influencing diagnosis and treatment of breast cancer among women in Ghana: a systematic review.

BMC Womens Health. 2024-5-14

[2]
Role of Physical Activity on Mental Health and Well-Being: A Review.

Cureus. 2023-1-7

[3]
Can domestic medical tourism contribute to healthcare equity? A commentary.

J Mark Access Health Policy. 2022-4-5

[4]
Cancer scenario in North-East India & need for an appropriate research agenda.

Indian J Med Res. 2021-7

[5]
Preparing for the NASH epidemic: A call to action.

Obesity (Silver Spring). 2021-9

[6]
Patient Roadmaps for Chronic Illness: Introducing a New Approach for Fostering Patient-Centered Care.

MDM Policy Pract. 2021-7-2

[7]
Perceived facilitators and barriers to chronic disease management in primary care networks of Singapore: a qualitative study.

BMJ Open. 2021-5-4

[8]
Depression and Anxiety in Patients With Cancer: A Cross-Sectional Study.

Front Psychol. 2021-4-15

[9]
The impacts of collaboration between local health care and non-health care organizations and factors shaping how they work: a systematic review of reviews.

BMC Public Health. 2021-4-19

[10]
Cancer statistics for the year 2020: An overview.

Int J Cancer. 2021-4-5

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