Centre for Addiction and Mental Health, Toronto, Canada.
University of Toronto, Toronto, Canada.
Health Expect. 2024 Dec;27(6):e70087. doi: 10.1111/hex.70087.
People with lived and living experience (PWLLE) and family members (F) can engage in mental health and substance use health research beyond participant roles, as advisors, co-researchers, equal partners and research leads. However, implementing meaningful and effective engagement is complex.
This article profiles five research initiatives involving different lived experience engagement structures, situated in a single tertiary care teaching and research hospital.
The profiled projects feature various study designs and stages, ranging from initial priority setting to implementation efforts. The levels of engagement range from consultation to PWLLE/F leadership. Across diverse populations, all embody high-quality engagement and illustrate that PWLLE/F can have an important impact on a wide range of mental health and substance use health research.
Engagement can be implemented flexibly within a single research institution to meet a wide range of needs and preferences of researchers and PWLLE/F.
Each of the research initiatives profiled was conducted with substantial lived experience engagement, as described herein. People with lived and living experience from each research initiative are also included in the authorship team and contributed to this manuscript.
有过生活经历和正在经历生活的人（简称 PWLLE）及其家属可以作为顾问、共同研究者、平等合作伙伴和研究负责人参与心理健康和物质使用健康研究，而不仅仅是作为参与者。然而，实施有意义且有效的参与是复杂的。
本文介绍了五个涉及不同生活经验参与结构的研究计划，这些计划都位于一家三级保健教学和研究医院。
所介绍的项目具有不同的研究设计和阶段，从最初的重点设定到实施工作。参与程度从咨询到 PWLLE/F 领导不等。在不同的人群中，所有项目都体现了高质量的参与，并表明 PWLLE/F 可以对广泛的心理健康和物质使用健康研究产生重要影响。
在单个研究机构内，可以灵活实施参与，以满足研究人员和 PWLLE/F 的广泛需求和偏好。
本文介绍的每个研究计划都进行了大量的生活经验参与，每个研究计划的生活经验丰富的人和正在经历生活的人也都包括在作者团队中，并为本手稿做出了贡献。
