Simpson Dinee C, Obayemi Joy E, Kershaw Kiarri N, Franklin John E, Ladner Daniela P
Northwestern Medicine Health Care, Chicago, Illinois, USA; Associate Professor of Surgery, Division of Transplant, Northwestern University Feinberg School of Medicine, Northwestern University Transplant Outcomes Research Collaborative (NUTORC), Chicago, Illinois, USA; Founding Director, African American Transplant Access Program, Comprehensive Transplant Center, Chicago, Illinois, USA.
Northwestern University Feinberg School of Medicine, Northwestern University Transplant Outcomes Research Collaborative (NUTORC), Comprehensive Transplant Center, Chicago, Illinois, USA.
NEJM Catal Innov Care Deliv. 2024 Sep;5(9). doi: 10.1056/CAT.24.0140. Epub 2024 Aug 21.
Black Americans experience end-stage kidney disease (ESKD) at a disproportionately higher rate than other racial and ethnic groups in the United States. Kidney transplantation provides the best outcomes for patients with ESKD. However, Black patients frequently have decreased access to kidney transplantation. This article summarizes the robust literature on disparities in transplantation for Black patients and presents a practical solution to this complex issue by redesigning the transplant access process for Black patients challenged by structural and institutional barriers. The authors provide a detailed overview of a novel African American Transplant Access Program (AATAP) with its pillars of cultural congruency, trust, health literacy, and psychosocial support. This overview includes a thorough description of the program's conceptualization, the process of creating the program, the preliminary results, and guidance to establish similarly culturally congruent transplant access programs.
美国黑人患终末期肾病(ESKD)的比例远高于美国其他种族和族裔群体。肾移植为ESKD患者提供了最佳治疗效果。然而,黑人患者获得肾移植的机会常常减少。本文总结了关于黑人患者移植差异的丰富文献,并通过重新设计受结构和制度障碍挑战的黑人患者的移植准入流程,为这一复杂问题提出了切实可行的解决方案。作者详细概述了一个新颖的非裔美国人移植准入计划(AATAP),其支柱包括文化一致性、信任、健康素养和心理社会支持。这一概述包括对该计划概念化、创建过程、初步结果的全面描述,以及建立类似文化一致的移植准入计划的指导。