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肺纤维化中的以患者为中心的护理:获得、预见和行动。

Patient-centered care in pulmonary fibrosis: access, anticipate, and act.

机构信息

Department of Respiratory Medicine, Center of Excellence for Interstitial Lung Disease, Erasmus University Medical Center, Rotterdam, The Netherlands.

Università Cattolica del Sacro Cuore, Rome, Italy.

出版信息

Respir Res. 2024 Nov 1;25(1):395. doi: 10.1186/s12931-024-02997-7.

Abstract

Comprehensive care integrates individual patient needs and is highly valued for patients with pulmonary fibrosis (PF). The importance of a patient-centered care approach is rooted in the unpredictable progressiveness of the disease course in PF. The respiratory impairment associated with PF has a major impact on the quality of life for both patients and their caregivers. We believe that prioritizing patient preferences could improve the shared decision making process and may ultimately lead to better health outcomes. Despite the growing emphasis for this approach, it remains challenging to adopt it in clinical practice. In this review, we propose the comprehensive Triple A Care Model, consisting of the domains Access, Anticipate, and Act, which emphasizes core elements of patient-centered care for patients with PF. We will provide an overview of the unmet needs in care for patients with PF and elaborate on the current methods for delivering patient-centered care. The latest insights into symptom management and supportive measures and several approaches to improving access to care are discussed, in line with the most recent guidelines.

摘要

综合关怀将个体患者的需求整合在一起,对肺纤维化 (PF) 患者具有高度价值。以患者为中心的关怀方法的重要性源于 PF 疾病进程的不可预测进展。PF 相关的呼吸损伤对患者及其照护者的生活质量都有重大影响。我们相信,优先考虑患者的偏好可以改善共同决策过程,并可能最终带来更好的健康结果。尽管这种方法的重要性日益增加,但在临床实践中采用它仍然具有挑战性。在这篇综述中,我们提出了综合 Triple A 关怀模式,由 Access、Anticipate 和 Act 三个领域组成,强调了 PF 患者关怀的核心要素。我们将概述 PF 患者护理方面的未满足需求,并详细阐述目前提供以患者为中心的关怀的方法。根据最新指南,我们将讨论症状管理和支持措施的最新见解,以及改善护理机会的几种方法。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c4af/11531140/0a6e473ff4b4/12931_2024_2997_Fig1_HTML.jpg

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