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美国全国跨学科临终关怀临床医生样本中通过医疗协助死亡全程陪伴患者死亡的意愿:理由的内容分析

Willingness to be present throughout patient death via medical aid in dying in a national sample of interdisciplinary US hospice clinicians: a content analysis of rationales.

作者信息

Becker Todd D, Cain Cindy L, Cagle John G, Davitt Joan K, Kusmaul Nancy, Sacco Paul

机构信息

School of Medicine, Washington University in St. Louis, 600 South Taylor Avenue, MSC 8100-0094-2400, St. Louis, MO 63110, USA.

Department of Sociology, University of Alabama at Birmingham, Birmingham, AL, USA.

出版信息

Palliat Care Soc Pract. 2024 Oct 31;18:26323524241288881. doi: 10.1177/26323524241288881. eCollection 2024.

Abstract

BACKGROUND

Although medical aid in dying (MAID) legalization continues to expand across the United States, limited research has elucidated attitudes toward its clinical provision, especially in terms of clinician presence.

OBJECTIVE

The objective of the current study was to explore attitudes toward presence throughout a patient's death via MAID in hospice physicians, nurses, social workers, and chaplains. Aims included (1) characterizing willingness to be present throughout patient death via MAID and (2) describing rationales for willingness.

DESIGN

We employed a cross-sectional design.

METHODS

A national convenience sample of interdisciplinary hospice clinicians in the United States ( = 413) completed a self-administered, mixed-method survey via Qualtrics. A quantitative item assessing participants' willingness (no, unsure, yes) to be present throughout a patient's death via MAID preceded a qualitative probe inquiring about their rationales behind their previous response. Quantitative responses were characterized through frequencies and percentages. Qualitative responses within each resulting quantitative subsample were content analyzed for surface-level meaning using inductive coding.

RESULTS

Participants who were willing to be present ( = 305 [74%]) attributed their willingness to personal support, definitions of quality clinical care, and values from their professional training. Some engaged in boundary setting, describing particular conditions under which they would be willing to be present. Those who were unwilling ( = 63 [15%]) noted personal objections to the concept of MAID, personal objections to MAID participation, and perceptions of MAID's misalignment with healthcare. Those who were unsure ( = 45 [11%]) premised their responses on ambivalence and a lack of experience, both of which precluded formulating a definitive position.

CONCLUSION

Although three-quarters of participants were willing to be present during MAID, qualitative responses revealed great nuance within and across quantitative subsamples. Hospice clinicians would benefit from greater professional guidance and support pertaining to MAID.

摘要

背景

尽管医疗辅助死亡(MAID)合法化在美国不断扩展,但针对其临床实施的态度研究有限,尤其是在临床医生在场方面。

目的

本研究的目的是探讨临终关怀医生、护士、社会工作者和牧师对患者通过MAID死亡全程在场的态度。目标包括:(1)描述在患者通过MAID死亡全程在场的意愿;(2)阐述愿意在场的理由。

设计

我们采用横断面设计。

方法

在美国抽取了一个全国性的跨学科临终关怀临床医生便利样本(n = 413),通过Qualtrics完成一份自填式混合方法调查问卷。一个定量项目评估参与者在患者通过MAID死亡全程在场的意愿(不愿意、不确定、愿意),之后是一个定性问题,询问他们之前回答背后的理由。定量回答通过频率和百分比进行描述。对每个定量子样本中的定性回答使用归纳编码进行表面意义的内容分析。

结果

愿意在场的参与者(n = 305 [74%])将他们的意愿归因于个人支持、优质临床护理的定义以及他们专业培训中的价值观。一些人进行了界限设定,描述了他们愿意在场的特定条件。不愿意的人(n = 63 [15%])指出个人对MAID概念的反对、对参与MAID的个人反对以及认为MAID与医疗保健不一致。不确定的人(n = 45 [11%])的回答基于矛盾心理和缺乏经验,这两者都使他们无法形成明确立场。

结论

尽管四分之三的参与者愿意在MAID期间在场,但定性回答显示在定量子样本内部和之间存在很大差异。临终关怀临床医生将从有关MAID的更多专业指导和支持中受益。

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The discursive context of medical aid in dying: A paradox of control?《死亡协助的话语语境:控制的悖论?》
Soc Sci Med. 2021 Dec;291:114501. doi: 10.1016/j.socscimed.2021.114501. Epub 2021 Oct 21.

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