Markowitz Benjamin, de Sequeira Stephanie, Najam Adhiyat, Pritlove Cheryl, Greenberg Dana, Greenberg Marley, Chan Chee-Mei, Lakhanpal Gurpreet, Jagadeesh Samyukta, Mukerji Geetha, Shulman Rayzel, Witteman Holly O, Yu Catherine H, Booth Gillian L, Parsons Janet A
Unity Health Toronto, Toronto, ON, Canada.
University of Limerick School of Medicine, Limerick, Ireland.
JMIR Diabetes. 2024 Nov 7;9:e60190. doi: 10.2196/60190.
Type 1 diabetes is a demanding chronic condition that requires diligent blood glucose monitoring and timely insulin administration by patients who must integrate self-management into their daily lives.
This study aimed to better understand what outcome measures are important to individuals living with type 1 diabetes (T1D) in Ontario, Canada, to help inform the development of type 1 diabetes virtual self-management Education and support (T1ME) trial.
A qualitative approach was used, in which we conducted 6 focus groups with a total of 24 adult participants living with T1D (from age 18 to >65 years) in Ontario. Each focus group was semistructured in nature; participants were encouraged to talk openly about their experiences with T1D self-management and provide their perspectives on more focused topics such as technology and relationships with health care providers.
An interpretive analysis helped us devise a framework for our results that centered around 6 main discussion themes: (1) adapting self-management to meet evolving needs, (2) looking "beyond A1c" toward more personalized indicators of glycemic management, (3) the benefits and challenges of adopting new T1D technology, (4) establishing trusting relationships with diabetes care providers, (5) perceived benefits of peer support, and (6) pre- and post-COVID-19 perspectives on virtual care.
Our goal is for these findings to help facilitate the development of patient-oriented outcome measures that are in line with the unique needs and preferences of T1D patients in this new, more virtual landscape of clinical care, education, and self-management support.
1型糖尿病是一种需要严格管理的慢性疾病，患者必须将自我管理融入日常生活，进行勤奋的血糖监测并及时注射胰岛素。
本研究旨在更好地了解哪些结果指标对加拿大安大略省的1型糖尿病（T1D）患者至关重要，以帮助为1型糖尿病虚拟自我管理教育与支持（T1ME）试验的开展提供信息。
采用定性研究方法，我们在安大略省对24名成年T1D患者（年龄从18岁至65岁以上）进行了6次焦点小组访谈。每个焦点小组本质上都是半结构化的；鼓励参与者公开谈论他们在T1D自我管理方面的经历，并就技术以及与医疗服务提供者的关系等更具针对性的话题发表看法。
一项诠释性分析帮助我们构建了一个结果框架，该框架围绕6个主要讨论主题展开：（1）调整自我管理以满足不断变化的需求；（2）超越糖化血红蛋白（A1c），关注更个性化的血糖管理指标；（3）采用新型T1D技术的益处和挑战；（4）与糖尿病护理提供者建立信任关系；（5）同伴支持的感知益处；（6）新冠疫情前后对虚拟护理的看法。
我们的目标是利用这些研究结果，助力制定以患者为导向的结果指标，使其符合在这一全新的、更具虚拟性的临床护理、教育及自我管理支持环境中T1D患者的独特需求和偏好。
