School of Nursing, Faculty of Science, Medicine, and Health, University of Wollongong, 33 Moore St, Liverpool, 2170, Australia, 61 (02) 8763 6000.
Centre for Chronic & Complex Care Research, Blacktown Hospital, Western Sydney Local Health District, Blacktown, Australia.
JMIR Cardio. 2024 Nov 7;8:e57328. doi: 10.2196/57328.
Heart failure (HF) is a complex syndrome associated with high morbidity and mortality and increased health care use. Patient education is key to improving health outcomes, achieved by promoting self-management to optimize medical management. Newer digital tools like SMS text messaging and smartphone apps provide novel patient education approaches.
This study aimed to partner with clinicians and people with lived experience of HF to identify the priority educational topic areas to inform the development and delivery of a bank of electronic-message driven tips (e-TIPS) to support HF self-management.
We conducted 3 focus groups with cardiovascular clinicians, people with lived experience of HF, and their caregivers, which consisted of 2 stages: stage 1 (an exploratory qualitative study to identify the unmet educational needs of people living with HF; previously reported) and stage 2 (a co-design feedback session to identify educational topic areas and inform the delivery of e-TIPS). This paper reports the findings of the co-design feedback session.
We identified 5 key considerations in delivering e-TIPS and 5 relevant HF educational topics for their content. Key considerations in e-TIP delivery included (1) timing of the e-TIPS; (2) clear and concise e-TIPS; (3) embedding a feedback mechanism; (4) distinguishing actionable and nonactionable e-TIPS; and (5) frequency of e-TIP delivery. Relevant educational topic areas included the following: (1) cardiovascular risk reduction, (2) self-management, (3) food and nutrition, (4) sleep hygiene, and (5) mental health.
The findings from this co-design case study have provided a foundation for developing a bank of e-TIPS. These will now be evaluated for usability in the BANDAIDS e-TIPS, a single-group, quasi-experimental study of a 24-week e-TIP program (personalized educational messages) delivered via SMS text messaging (ACTRN12623000644662).
心力衰竭（HF）是一种与高发病率和死亡率以及增加医疗保健使用相关的复杂综合征。患者教育是改善健康结果的关键，通过促进自我管理来优化医疗管理来实现。短信文本消息和智能手机应用等较新的数字工具提供了新颖的患者教育方法。
本研究旨在与临床医生和有心力衰竭生活经验的人合作，确定优先教育主题领域，为开发和提供一系列电子信息驱动提示（e-TIPS）以支持心力衰竭自我管理提供信息。
我们进行了 3 次焦点小组讨论，参与者包括心血管临床医生、有心力衰竭生活经验的患者及其护理人员，讨论分为 2 个阶段：第 1 阶段（一项探索性定性研究，旨在确定患有 HF 的人未满足的教育需求；此前已报道）和第 2 阶段（合作设计反馈会议，以确定教育主题领域并为 e-TIPS 的交付提供信息）。本文报告了合作设计反馈会议的结果。
我们确定了 5 个在提供 e-TIPS 时需要考虑的关键因素和 5 个与 e-TIPS 内容相关的 HF 教育主题。在 e-TIP 交付方面的关键考虑因素包括：（1）e-TIPS 的时间；（2）清晰简洁的 e-TIPS；（3）嵌入反馈机制；（4）区分可操作和不可操作的 e-TIPS；（5）e-TIP 交付的频率。相关教育主题领域包括：（1）心血管风险降低，（2）自我管理，（3）食物和营养，（4）睡眠卫生，（5）心理健康。
这项合作设计案例研究的结果为开发一系列 e-TIPS 提供了基础。这些 e-TIPS 将在 BANDAIDS e-TIPS 中进行可用性评估，这是一项为期 24 周的 e-TIP 计划（个性化教育信息）的单组准实验研究，通过短信文本消息进行（ACTRN12623000644662）。
