Meyerhoff Jonah, Popowski Sarah A, Lakhtakia Tanvi, Tack Emily, Kornfield Rachel, Kruzan Kaylee P, Krause Charles J, Nguyen Theresa, Rushton Kevin, Pisani Anthony R, Reddy Madhu, Van Orden Kimberly A, Mohr David C
Department of Preventive Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States.
Mental Health America, Alexandria, VA, United States.
JMIR Form Res. 2025 Feb 26;9:e69602. doi: 10.2196/69602.
Young adults in the United States are experiencing accelerating rates of suicidal thoughts and behaviors but have the lowest rates of formal mental health care. Digital suicide prevention interventions have the potential to increase access to suicide prevention care by circumventing attitudinal and structural barriers that prevent access to formal mental health care. These tools should be designed in collaboration with young adults who have lived experience of suicide-related thoughts and behaviors to optimize acceptability and use.
This study aims to identify the needs, preferences, and features for an automated SMS text messaging-based safety planning service to support the self-management of suicide-related thoughts and behaviors among young adults.
We enrolled 30 young adults (age 18-24 years) with recent suicide-related thoughts and behaviors to participate in asynchronous remote focus groups via an online private forum. Participants responded to researcher-posted prompts and were encouraged to reply to fellow participants-creating a threaded digital conversation. Researcher-posted prompts centered on participants' experiences with suicide-related thought and behavior-related coping, safety planning, and technologies for suicide-related thought and behavior self-management. Focus group transcripts were analyzed using thematic analysis to extract key needs, preferences, and feature considerations for an automated SMS text messaging-based safety planning tool.
Young adult participants indicated that an automated digital SMS text message-based safety planning intervention must meet their needs in 2 ways. First, by empowering them to manage their symptoms on their own and support acquiring and using effective coping skills. Second, by leveraging young adults' existing social connections. Young adult participants also shared 3 key technological needs of an automated intervention: (1) transparency about how the intervention functions, the kinds of actions it does and does not take, the limits of confidentiality, and the role of human oversight within the program; (2) strong privacy practices-data security around how content within the intervention and how private data created by the intervention would be maintained and used was extremely important to young adult participants given the sensitive nature of suicide-related data; and (3) usability, convenience, and accessibility were particularly important to participants-this includes having an approachable and engaging message tone, customizable message delivery options (eg, length, number, content focus), and straightforward menu navigation. Young adult participants also highlighted specific features that could support core coping skill acquisition (eg, self-tracking, coping skill idea generation, reminders).
Engaging young adults in the design process of a digital suicide prevention tool revealed critical considerations that must be addressed if the tool is to effectively expand access to evidence-based care to reach young people at risk for suicide-related thoughts and behaviors. Specifically, automated digital safety planning interventions must support building skillfulness to cope effectively with suicidal crises, deepening interpersonal connections, system transparency, and data privacy.
美国的年轻人自杀念头和行为发生率正在加速上升,但接受正规心理健康护理的比例却最低。数字自杀预防干预措施有可能通过规避阻碍人们获得正规心理健康护理的态度和结构障碍,增加获得自杀预防护理的机会。这些工具的设计应与有自杀相关想法和行为经历的年轻人合作,以优化其可接受性和使用率。
本研究旨在确定基于自动短信文本的安全计划服务的需求、偏好和功能,以支持年轻人对自杀相关想法和行为的自我管理。
我们招募了30名有近期自杀相关想法和行为的年轻人(年龄在18 - 24岁之间),通过在线私人论坛参加异步远程焦点小组。参与者回复研究人员发布的提示,并被鼓励回复其他参与者,从而创建一个线程式数字对话。研究人员发布的提示集中在参与者与自杀相关想法和行为相关的应对、安全计划以及自杀相关想法和行为自我管理技术的经历上。使用主题分析法对焦点小组记录进行分析,以提取基于自动短信文本的安全计划工具的关键需求、偏好和功能考虑因素。
年轻参与者表示,基于自动数字短信文本的安全计划干预措施必须以两种方式满足他们的需求。第一,通过使他们能够自行管理症状,并支持获取和使用有效的应对技能。第二,通过利用年轻人现有的社会关系。年轻参与者还分享了自动干预的3个关键技术需求:(1)干预功能的透明度,它采取和不采取的行动种类、保密限制以及程序中人工监督的作用;(2)强大的隐私保护措施——鉴于自杀相关数据的敏感性,干预内容以及干预产生的私人数据将如何维护和使用的数据安全性对年轻参与者极为重要;(3)可用性、便利性和可及性对参与者尤为重要——这包括具有平易近人和引人入胜的消息语气、可定制的消息传递选项(例如长度、数量、内容重点)以及简单的菜单导航。年轻参与者还强调了可以支持核心应对技能获取的特定功能(例如自我跟踪、应对技能想法生成、提醒)。
让年轻人参与数字自杀预防工具的设计过程揭示了一些关键考虑因素,如果该工具要有效地扩大获得循证护理的机会,以帮助有自杀相关想法和行为风险的年轻人,就必须解决这些因素。具体而言,自动数字安全计划干预措施必须支持培养有效应对自杀危机的技能、深化人际关系、系统透明度和数据隐私保护。