超越队列：探索乳腺癌患者故事中的等待实践。

Beyond the Queue: Exploring Waiting Practices in the Stories of Patients With Breast Cancer.

机构信息

Department of Health Care Governance, Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.

出版信息

Health Expect. 2024 Dec;27(6):e70086. doi: 10.1111/hex.70086.

DOI:10.1111/hex.70086

PMID:39552206

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11570769/

Abstract

BACKGROUND

Waiting is an important topic in healthcare debates, mostly discussed in the form of waiting lists and waiting times. In this discourse, the experiential element of waiting stays hidden. Understanding the waiting experiences of patients can help to better understand healthcare waiting practices, which have a large impact on patients.

METHODS

We performed a thematic analysis on 12 patients' books of women with breast cancer. We focused on the theme of waiting within these stories, through an abductive analysis.

RESULTS

We identified three themes within the waiting practices of patients with breast cancer: (1) Thickening of time, (2) contaminated time and (3) navigating time. The theme thickening of time highlights waiting moments where time is experienced as moving at a very slow pace with intense emotional impact. The theme of contaminated time highlights the waiting processes as an ongoing component of experiencing illness. The theme of navigating time highlights patients' temporal agency, showing their waiting work in the form of strategies for dealing with practical and emotional aspects of waiting.

DISCUSSION

The waiting experiences of patients provide insights into the burden of waiting, which is partly connected to the way healthcare services are organised and the experience of illness. Understanding these multifaceted experiences of patients helps pinpoint areas for healthcare quality improvement.

PATIENT OR PUBLIC CONTRIBUTION

The choice for the theme and approach of this research, waiting, was developed with a citizen science initiative of collecting patient stories.

摘要

背景

等待是医疗保健辩论中的一个重要话题，主要以等待名单和等待时间的形式进行讨论。在这种论述中，等待的体验元素被隐藏了。了解患者的等待体验有助于更好地理解对患者影响巨大的医疗保健等待实践。

方法

我们对 12 名患有乳腺癌的女性患者的“患者之书”进行了主题分析。我们通过归纳分析，聚焦于这些故事中的等待主题。

结果

我们在乳腺癌患者的等待实践中确定了三个主题：（1）时间的增厚，（2）污染的时间和（3）时间的导航。时间增厚主题突出了患者体验到的时间非常缓慢流逝且情绪强烈影响的等待时刻。污染时间主题突出了等待过程是体验疾病的持续组成部分。导航时间主题突出了患者的时间代理，展示了他们等待工作的形式，即处理等待的实际和情感方面的策略。