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像时钟一样规律?(重新)想象肠易激综合征(IBS)患者的生活节奏和日常习惯。

Like clockwork? (Re)imagining rhythms and routines when living with irritable bowel syndrome (IBS).

机构信息

School of Education, University of Sheffield, Sheffield, South Yorkshire, UK.

出版信息

Sociol Health Illn. 2023 Jul;45(6):1259-1275. doi: 10.1111/1467-9566.13504. Epub 2022 Aug 5.

Abstract

Temporal trajectories of health, illness and disability-from biographical change to micro-embodied practices within social time-are important strands within medical sociology and disability studies. Drawing upon a UK-based qualitative study using diaries and follow-up interviews to explore everyday life with irritable bowel syndrome (IBS), this article explores routines when living with the condition. It focuses specifically on accounts of routines being anticipated, slowed down and stretched out to accommodate and/or care for bodies, with personal and social rhythms weaved in, out and with each other. Such reflections are told through participants' accounts of knowing routines and rhythms, stretching out and pacing morning routines to care for the body and how everyday practices are reimagined as the body and the social meet. Drawing upon the concept of 'Crip Time' where the social bends to meet with the body, this article seeks to illuminate important intersections between medical sociology and disability studies through accounts of living with IBS. This article demonstrates the entanglement of structural, disabling temporal rhythms and embodied temporalities, through an acknowledgement of routines reimagined. It offers a contribution to both medical sociology and disability studies in reimagining social lives with embodied temporalities in mind.

摘要

健康、疾病和残疾的时间轨迹——从传记变化到社会时间内的微观体现实践——是医学社会学和残疾研究的重要组成部分。本文借鉴了一项基于英国的定性研究,该研究使用日记和后续访谈来探索肠易激综合征(IBS)患者的日常生活,探讨了与该疾病共存时的日常生活规律。本文特别关注日常生活规律被预期、减缓或延长以适应和/或照顾身体的情况,其中交织着个人和社会的节奏。通过参与者对日常规律和节奏的描述,以及为了照顾身体而延长和调整早晨常规的情况,本文讲述了这些反思。本文还借鉴了“Crip Time”的概念,即社会顺应身体的需求,通过对 IBS 患者生活的描述,阐明了医学社会学和残疾研究之间的重要交叉点。本文通过对重新想象的日常生活规律的认识,展示了结构性、致残的时间节奏和体现时间性的交织。它为医学社会学和残疾研究做出了贡献,重新想象了与体现时间性的社会生活。

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